What treatments do your docs recommend for "flare up's" that interfere with everyday life?

I now get short of breath walking very short distances and talking and my swallowing has gotten to the point where I had a feeding tube put in 3 wks ago and theoretically shouldn't taking anything by mouth.

I have been told to rest and take it easy, and after 1-2 weeks of that, am not much improved (although I can breath OK if I'm sitting propped up against something and not talking)

I have an appoint with a doc at Hopkins the end of July, but i really think that something should be done now. I called my neurologist office yesterday and told them the SFEMG at Hopkins was positive, but I've not heard back yet.

I'm getting tempted to do a trial of prednisone myself as I have a bunch around from various asthma issues. Even if I screw up, at least I'm trying something