Hi,
I am new to this site and new to MG.
When I was 20 I was diagnosed with Sjögrens Syndrome, and when 23 with Systemic Lupus (SLE). All the years I've had times where I had trouble walking but I always thought it had something to do with SS or SLE.

The last year, how ever, it's been increasingly worse. Now I can only walk 5-10 min. and then my legs start to get weak. It gets worse and worse and after 5-15 min. more, I can hardly move my feet. It's like the message from the brain just doesn't get to the legs. Sometimes I have it in my arms too - then I can't even lift a cup of tea. One time I even experienced I couldn't talk - I wanted to but my mouth just couldn't form any sounds.

I was tested 'slightly positive' for MG recently but they say that my symptoms are not the common ones so they want me tested in all sorts of ways (MR-scan, testing of the nerves and maybe a muscle biopsy). How ever there is a long waiting time for these examinations and meanwhile I don't know what to do with all these thoughts.

Among the 'not-normal' symptoms is that I can wake up from sleep and have the muscle weakness. Apparently it should go away after rest. Maybe it could be because both Sjögren's Syndrome and Lupus gives chronic fatigue, so I am never rested? I don't have double vision or anything with speech other than the one time where I just couldn't say a thing.

So - can it be MG anyway or was the bloodtest just wrong? If it is MG will I develop the facial symptoms over time, or is it only some people who has that? I am sorry for spamming you all with so many questions, but I really don't know what to think about this.