Hi Erin,

I think your idea sounds great. Over here in Scotland there is a fairly active MG association and they have loads of information pamphlets, posters and clothes availble. I bought a hoody a couple of years ago but sadly with my weight gain it no longer fits! You might be able to get some ideas ect from their website - let me know if I can be of help (I know sometimes international shipping etc can be a pain).

I've always found people to be generally interested in MG - because I look so healthy and managed to live a fairly active life they are always surprised to find out I'm actually heavily medicated and need to constantly self-monitor! I got some pamphlets about MG from the MGA here and showed them to the people I work with and they were all full of questions etc. The pamphlets are well written too - a sort of "everymans" information pack (they speak about MG as a "rag-doll disorder). The MGA also do a bunch of fundraisers and even send people with MG into schools to speak to kids about what it's like. I think any type of information is good and everyone should be educated to the best of their ability. Maybe some won't care (of course) but who knows - you might help one person who has all the right symptoms and didn't know what was going on!

What ever you decide to do keep us posted!

Thank you! I think that what you are doing in Scotland is wonderful! As for me, I'd love to try and spread awareness. I think any info is a wonderful thing! MY hubby has a radio show (on Saturdays) and has spoken quite a bit about my MG and we have actually gotten calls @ our office asking about MG as well as saying that people are praying for me..............I think that is sooooooo sweet!

People ask about my thymectomy scar all the time and then ask about MG, so why not tell them? Like you said, they have no idea that we are always heavily medicated and yet lead fairly normal lives (or hope to)

Take care and let me know how you are when you get a chance!
Erin

P.S. My little niece (she's 6) thinks that MG is "cool"! She tells all of her classmates that her auntie has "myashtenia gravis" and then proceeds to ask my sis if I'm @ another dr's appt and then tells all of her friends that I'm on "a lot of meds" but am getting better.........Isn't it weird what little kids perceive @ "cool"? She also wants me to have lunch with her this week @ school and meet all of her friends.......................I was worried that she'd be embarrassed by my "moon face", but apparently I'm cool! I just love little ones! She comes over and we have dance competitions - she just brings such joy to my life! I love having her over!

Hi Erin,

sorry its taken a few days to reply, am a bit tired at the moment. I think if you want to do the t shirts go for it. Its not something I would want to do my self, but I think its a good idea.
As for writing a testimonial, well I'd love to do that for you, but at the moment Im just so tired and typing and trying to think of what to write would be difficult(I am starting out my days with less spoons than normal!!), but it depends on how quickly you want it!?!?!?

I belong to the western Austraian MG friends and support group, they have had small pamphlets, booklets and a pamphlet about drugs to avoid to give to Drs etc printed up these are great, I give them to familys friends hospitals dentists, vvery helpful.

Hope you get some rain soon, we to are having a dry spell, it was the driest August in 30 years!! it seems we either have to little or too much rain around the world.

take care
redtail

You should do up the magnetic bumper stickers like they have for Autism.

I actually saw that today - my hubby pointed it out - and have decided that ALL of my family will put them on their cars........along with the shirts - that includes YOU Aaron.....................Live it, learn it, love it!

They should be hypercolor shirts..and MG awareness leg warmers.

I I'll put a magnet on my car, if you make them.

You better wear them though! I can order some within the next couple of days...........

Hey girl! I hope you are feeling better today! I was working earlier, but came home early - I was a little tired! Still, I've gotten quite a bit of work done thse few weeks
I am totally doing the t shirt thing! Maybe people will think I'm weird, but I"ve never really been swayed by what other's think. Plus, if it will help one person,then it's worth it! I'm going to have bumper stickers made as well - what the hey - if I'm going to do it, I may as well go all the way! People always ask about my scar anyway, so why not? I'm actually kind of proud of it! My hubby mentioned plastic surgery the other day to have it removed, but there is NO WAY I'm going under the knife again...........It's not all that bad anyway (my scar, not going under the knife)....... Don't worry about the testimonial - it was silly of me t ask anyway, especially since you've been feeling a little tired recently...........I'm going to go take a nap! Take care!
Erin

Erin, Please let me know when/if you do get bumper stickers etc done - I'd love to buy a couple for my family! The leg warmers sound interesting too !!

Hope everyone is well - I've had a brilliant month and can't wait to go see my neuro on Monday! I'm sure he'll let me reduce my steriods further (GOODBYE moon face). I'm so thankful for all my good days, espeically considering how terrible I felt this time last year! I'm hoping the best for all of you too.

Take care,
~Kathy