This is probably going to sound really stupid, but what do you mean by eye pressure? Is this yet another side effect of these crazy steriods!?! Should I be checking my eyes somehow?? I've been planing to get an eye check up soon - I've had the same prescription lenses for about 8 years and haven't been to see an eye doctor since I was diagnosed. So when I go should I ask about pressure too? Sorry about all the questions - man, just when you think you've got this thing figured out!!

Hugs to everyone!

Steroids can induce glaucoma , see http://vision.about.com/od/eyediseases/p/Glaucoma.htm
by increasing the eye inner pressure …
Maurice.

If I were you, I would definitely get my eyes checked......mine was just s fluke type situation, cuz' I have 20/10 vision, but need reading glasses since my eyes get so tired. That's when the doc discovered my eye pressure had gone up so many points - not a good sign. She also told me it was very common in people who take steroids for long periods of time (aren't we lucky?), so we ahould all get our eyes checked more often! I go in on the 8th for the full workup...........wish me luck!

Thanks Maurice and Erin!
I will definitely make an appointment to get my eyes checked out. I guess I've just been procrastinating! With everything else that has gone on in the past year the last think on my mind has been my vision.
Hope everyone had a great weekend. It's been beautiful here in Scotland - two sunny weekends in a row - I can hardly believe it!!
Take care,
~Kathy

Thanks for keeping my mom in your prayers. I know she'll appreciate it, and I most certainly do!
I'm on mestinon every 4 hours (120mg.), Cellcept, and IVIG every 4 weeks - in fact this Saturday. Since last month, I've had a home health nurse, and I love getting IVIG at home! So much more comfortable here at home!
I stay pretty busy so have to make sure that I make myself rest. I've definitlely gotten better at it over the last couple of years.
I've had to be on prednisone off and on but never for long periods. I wear contacts (very near-sighted.) My eyes are tired in the evenings, and then I deal with some blurry vision but that's about it. My eyelids droop more and more...that first week after IVIG, I look like I've an eyelift! It's wonderful!

Gabelle,


Why are you having IV IG every 4 weeks? When I read that yesterday, I was just so curious I knew I'd have to post today and find out........Are you also on steroids? How has the Cellcept worked for you? My neuro told me that some of his patients don't take steroids but have IV IG every 3 weeks or so - is that what is going on with you? I hate needles so much that for me it simply wasn't an option, but I do love the way I feel after my IVIG treatments - I call them "liquid gold" cuz' I feel like I can climb the ighest mountain and swim the deepest sea........Plasmaphoresis was AWFUL! It was the most invasive thing I've ever gone through ( I preferred my bone marrow test to it)....I hope to never have that again, but will do whatever it takes t o try and stay healthy......My fellas need me around to take care of them, and quite frankly I love taking care of them! I stayed home from work today to try and get some rest (I've been working 6 days a week recently), so hopefully I'll take a good nap and feel ready for karaoke tonight.........How is your mom?

When you get some time, please let me know how you are!

Take care!
Erin

I went and saw my wonderful optometrist yesterday(if he wasn't married to a wonderful lady I think I would snap him up!!) he was the one that unofficially diagnosed me, so he will always have a soft spot in my heart.

We were talking about all my problems, meds etc, and I said we'd (us here) had been talking about pred and the pressure in eyes it causes, and he said although it can, in my case on low doses, I would be more prone to Cateracts than glucoma, oh Yay!!!!

He went on to do a huge number of tests, informed me my eyesight was near on Perfect(well I have to have one thing that works!!!!!!!) but I had VERY early stages of cateracts starting in my left eye, but not to worry because it will be years before I had to worry.

I always leave him on a high, he is so caring and concerned, and always puts your fears to rest.
redtail

ps cant believe you can get IVIG every 4 weeks, my doctor has to put in a submission so I can get it, as it is so hard to get here in Australia, its on a need basis, not first come first served, I think I need to do some blood drive campaigning!!

I have a bit of a crush on my neuro as well. He is just so amazing and caring - I have a bit of hero worship going on as well...........He is also married - though I don't know if he's "happily" married, but I am, so shucks! I still remember waking up from my thymectomy to find him holding my hand - it was so sweet! When I saw him this week, I embarrassed him once again - telling him I was going to hug him - he turned so red - it was quite cute!

Last night was a blast! I sang for about 3 hours straight! I was was dancing like a fool and singing "Baby got back" by Sir Mix a Lot - my hubby was beaming! I had to see my sisters-in-law - - not fun, but I still had an absolutely wonderful time! Today I am a bit sore, but it was allllllllllll worth it!

I can't wait for my eye exam - my vision is 20/10, but I've been having a few problems lately (eyes getting blurry but not drooping) and I don't want IV IG unless I truly need it - hate needles! I know if I call my doc, I'll be in next week and just don't want to go through it again................

Let me know how you are doing when you get a chance!
Erin