Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

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Old 10-22-2008, 07:38 PM #1
lilsalliann lilsalliann is offline
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lilsalliann lilsalliann is offline
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Default thank you

i just sent a really long reply but i doont know what happened to it so i hope i am not replying twice. anyway i wanted to say thank you to all of you who replied and sent welcomes. i have been going for different test all week long. ent. eeg, qst, bloodwork (the place where i went didnt do the musk ab they said i would need to go to hospital for that) i have had mri, mri w contrasr, mra, and mri of spine for neck pain. my neuro suspects mg, my pcp suspects ms. i dont know what i have but i know i just continue to get weaker and weaker. i do not have swallowing problems or finger weakness. i do have extreme leg weakness and arm weakness, ptosis and occasional blurred vision.i also have slight brathing difficulty. i sympathize with all of you. you all seem very kind.
thanks again
sallyann
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Old 10-23-2008, 10:11 AM #2
lilsalliann lilsalliann is offline
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lilsalliann lilsalliann is offline
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hi redtail
and thank you for the welcome
my mri's were of the brain. areas of high signal were in the pons region and adjacent to the left frontal horn. and honestly i have no idea what that means either. i have been going for test frequently but my follow-up isnt until sometime mid november(cant remember the date right now). i wish it would be sooner but neuro wants all test reports before makeing any dx.
sally


Quote:
Originally Posted by redtail View Post
Hi Sally

welcome!!

Not sure what you mean by MRI showed areas of high signal, is this to do with your thymus??


When do you go for testing?? let us know, its a great place for support and to get your questions answered no matter what they are!

take care, and try not to stress too much, as this will make your MG worse, if it is MG
(easier said than done I know, I still stress about the littlest things)

redtail
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