Oh yes! Every time I have a PICC line inserted they take it out when I'm done with my IV IG - talk about gross!

I am now considering a permanent port in my chest (less fuss and muss) and they can access it very quicky - thank Heaven for that!!! My neuro doesn't seem to think that it is necessary, as I am not all that sick,, but my hema STRONGLY recommended it - I am completely confused, though I'll do anything to try and stay strong for my fellas.............

Today was a GREAT day! My home is starting to look festive already - I know it's soon, but I never know how much energy I'll have in the future and figure that I may as well do it when I am up to it!!!

Tell me moe about you - how are YOU? What were your symptoms? How old are you? When were you diagnosed?

You'll have to forgive me, but I am still a newbie (I was diagnosed on March 6th and had a thymectomy April 22nd).

In fact, there are still days when I wake up and think that this has all been some sort of terrible nightmare (until I see my huge amount of pills that I have to take.......)

I have decided to be as positive as possible. I have this disease - it does not have me! I have been really blessed with a great support group and am thankful that I have insurance for all of my meds........

When you have some time, I'd love to hear your story!!

Take care!
Erin