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Old 12-03-2008, 08:00 PM #1
kpearl kpearl is offline
Junior Member
 
Join Date: Dec 2008
Location: Canada
Posts: 9
15 yr Member
kpearl kpearl is offline
Junior Member
 
Join Date: Dec 2008
Location: Canada
Posts: 9
15 yr Member
Default Does it get worse

Just recently diagnosed. I've been miss diagnosed for probably 2 or more years. First symptoms were fatigue, major fatigue, palpitations, shortness of breath, and now that I look back I have always had some muscle weakness. I just figured the muscle weakness was due to getting older. GP sent me for holter testing and echo, test showed strong heart and normal echo. Palpitations probably caused by shortness of breath, ofcourse it must be asthma, and was put on an inhaler. Needless to say it didn't help. I'm very stubborn, not a good patient, went back to GP because I couldn't breath, probably a year later, she sent be for CT of lungs, normal. Now I'm beginning to think its all in my head. But guess what, I now presented with ptosis of left eye. No double vision though, just blurry when tired. This was just a couple of months ago, and 3 weeks ago I ended up in ER. I couldn't fill my lungs with air. What a horrible experience. I was then sent to a neurologist. Blood work and EMG normal, but because of my symptoms they did diagnose me with MG. I was put on Mestinon. Works great for about 4 hours. I am so confused, and scared that I will end up in ER again because I can't breath. Mestinon has definetly helped with my muscle strength, but the breathing can still get laboured when fatigued. Will I get worse?
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