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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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Junior Member
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SIGH...
It seems like this happens a lot when when the rate is too fast, you're not fully hydrated, etc. Do you get the Benadryl & Tylenol for pre-meds? I actually start take 25 mg. of Benadryl every 8 hours the night before my infusion, every 4 hours the day of, and every 8 hours the day following. Also, push the water the night before in a major, major way. I have been very lucky, so far (knock wood) and have never personally experienced the symptoms you are experiencing. I hope that they'll run it MUCH slower for you next time & please try to not get too discouraged. Best wishes, Ro
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"The name's Mya....Myasthenia" |
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#2 | |||
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Member
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HI, Gabe! I've never had Ivig, so have no advice whatsoever, except perhaps to tell them to slow it down this time. But you do have all my sympathy. That degree of tiredness doesn't really sound like overdosing, especially if you had none of the other symptoms of overdose, such as excessive saliva, twitchy muscles, stomach cramps and diarrhea. I always get the twitchies especially around the eyes when I OD on Mestinon, which usually only happens if I take it without food and take it a little early. I always keep Atropine for those few times I do OD. It really helps with the stomach cramps and other symptoms. I've NEVER had extra fatigue from overdosing. I would think you would have to be REALLY overdosed to get the extra fatigue.
Hugs,
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Lois . |
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