Thanks everyone...I do take Benadryl and Tylenol before IVIg. Angie, I think it is interesting that we both had the same reaction to IVIg and we are both from Minnesota. May lean more toward lot# than infusion time...but I will definitely ask them to slow it down. I did drink a ton of extra fluids the day before and the day of the infusion. Ro, I may try your trick with the extra Benadryl before and after although I am so tired now I will probably be comatose!

Lois, I agree with the Mestinon OD issues - whenever I have taken too much I know and this is not how that feels. I tried his dosing recommendations and can't function so I left a message tonight and went back to what feels right rather than what he thinks sounds right.

I have IVIg again Friday and see the neurologists nurse practioner next week. It'll all be fine but sometimes you just have to rant! Thanks for the support.
Gabe

The same thing happened to me this was the first and last time that i will ever get IVIG , i got something called aspect meningitis and as you i was so sick i just wanted to die ,now i only get pheresis i will never get ivig again hope you feel better soon good luck

Thanks Little Wish...I feel better just weak - like I never got IVIg at all - but I'll be getting it again Friday and I'm hoping it works! Meanwhile I am wading through and doing what I have to. I haven't heard back from the doctor but took more Mestinon today - had food and liquids coming through my nose at the dose he wants me on so I made an executive decision and took more. I can eat and drink again but I can't unload the dishwasher! Shucks, I guess what kids are for!
Gabrielle

well im glad your feeling better ,try not to do so much , you dont want to get any weaker than you already are ,and i know about the food and liquids coming through the nose i now have a feeding tube and i hate is so much ,well good luck and hope you feel better real soon