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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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11-15-2006, 05:28 PM | #1 | ||
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Junior Member
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The same thing happened to me this was the first and last time that i will ever get IVIG , i got something called aspect meningitis and as you i was so sick i just wanted to die ,now i only get pheresis i will never get ivig again hope you feel better soon good luck
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11-15-2006, 07:45 PM | #2 | ||
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Junior Member
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Thanks Little Wish...I feel better just weak - like I never got IVIg at all - but I'll be getting it again Friday and I'm hoping it works! Meanwhile I am wading through and doing what I have to. I haven't heard back from the doctor but took more Mestinon today - had food and liquids coming through my nose at the dose he wants me on so I made an executive decision and took more. I can eat and drink again but I can't unload the dishwasher! Shucks, I guess what kids are for!
Gabrielle |
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11-16-2006, 11:55 AM | #3 | ||
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Junior Member
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well im glad your feeling better ,try not to do so much , you dont want to get any weaker than you already are ,and i know about the food and liquids coming through the nose i now have a feeding tube and i hate is so much ,well good luck and hope you feel better real soon
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