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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Junior Member
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Lizzie,
I am so glad you got some answers and it sounds like you saw a good person who understands MG. I had IVIg Friday and still feel crummy so I'll write more later. Gabe |
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#2 | |||
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Member
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I have the cellcept, and I'm starting out at 500mg, and then I have to slowly work up to 2000mg. But, I'm waiting until after Thanksgiving to try it, as I really don't want to take a chance of getting sick before. Plus tomorrow, I go in and have my final part of my root canal done, so, I needed to be well for that to get done. I have such sensitivity to so many meds, that I'm a little afraid, but desparate. I saw the director of the MDA clinic, so he deals with this all the time. It was like talking with you guys, he really knew his stuff, and is up on everything. Extremely easy to talk to. Gabe, praying for you. Do you always get sick when you have it, or is this the first time? Love lizzie |
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#3 | ||
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Junior Member
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Seems like it was your lucky day!!!!
Where these drs older and more knowledgable ??? Would really be nice if there was some sort of protical for testing for MG, just like testing for MS. We sure could use that, seems that most neuros only know touch your nose lol ![]() So nice that you found someone to help you out. Let use know how a speech therapist helps you, I sure could use that, I almost don't like to talk to strangers anymore, I feel stupit when words come out wrong. ![]() Take care, Patricia ![]() |
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#4 | |||
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Member
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Lizzie, I think we all want to share in your education. You have such a good way of communicating, too, so keep us updated on all of the good stuff you are going to be learning.
Hugs,
__________________
Lois . |
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