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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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In Remembrance
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John, Dr Weiss (a neurologist) see's many MG patients. (he diagnosed me after a very very long drive to see him and of course driving to florida for doc care was not practical in the long term----esp given the shape I am in now.
The team who does the thymectomies there in the hospital by his office are well versed in the special needs of the MG patient as well as the thymectomy itself. Lots of experience there!! And nothing beats experience. And have neuro close by who is versed in MG if you happen to get in trouble. So over all is a win win. I am sure you don't have to be his patient to get the fyi on who the surgeon is that does them. And the surgeon is responsible for picking the anesth team as well. And like I said this is old hat to these guys there. And to boot pretty sure they are in network for united health care. That is who I had way back when. Deb Last edited by justdeb; 12-23-2008 at 09:38 PM. Reason: addition |
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Junior Member
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Hi!
After determining the top ranked Neuro Dept. in the U.S. News website, check if any are located in your area. Then, research their web sites for details about their Neuro Dept and surgeons. Other methods: * go to MG Foundation of American and look for local chapters in your area. Then, ask for referrals for the local chapter. * start a very visible thread like "Need Referrals for Thymectomy NeuroSurgeons in __________." This will get you a lot of referrals from members. Hope this helps. Good luck on your surgery and wedding. Rohm. |
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