I guess taking so many darn pills every day really can mess with anyone's memory! I have just been feeling like I've been in a fog recently - augh!!!

Had mylast IV IG and felt AWESOME but waaaaaaay over did it and am paying the price! C'est la vie!!!!

How are YOU feeling? Did you have a great xmas?

Erin

I am doing well right now. I had 6 weeks almost symptom free and then a one week "mild-moderate" flare up and now back to mostly good. I just infused 50 grams of IVIG this afternoon in hopes of making it through the next few weeks on a high note.

Christmas was peaceful. Visits with several friends and my mom. Everyone liked their presents and there were no "conflicts" of any kind.

Hope everyone else is heading toward the new year in a good state--physically and mentally!

Missy

I hope this means that next year you will feel great!!!!!!!

Take care!!!!!
Erin

Hello again! My speech problems did not go away til I was on my roids. They made all the difference in the world!

I know it is embarrassing, but you have a disease - granted, our disease is one that does have life long remission, but it is still a disease............

Hang in there!

I don;t think speech therapy will work, but hopefully someone who knows a little more will be able to help you with that one..........

Erin

Cricket...

I too started my original symptoms much the same way. My voice & my vision WERE my livelihood. I don't believe you need speech therapy. You don't have any impediment, EXCEPT for the fact that your muscles are too weak and don't have the strength required to 'make' the words happen. (You may find that your tongue feels like a dead-weight in your mouth as well).

Mestinon alone helped me originally, however after my thymectomy, symptoms become worse, and adding steriods did help. Nobody enjoys going on them, but they are for our benefit. The fact that the Mestinon is helping some of the symptoms is a good indicator. My suggestion would be to discuss with your neurologist to start you on prednisone so that you can feel the benefit, and then adjust dosage as needed. There is only one way to find out if it will work, and that is to try.

Best of luck....oh and remember... Life is great - even with additional weight! hahahahaha

Lydia

Thanks! I am trying to hang in there
I am going to back to my neurologist tomorrow. Hopefully, he will understand my denial..and help me get back on track!

Cricket

Does physical therapy help with speech?? I feel like I my lips and jaw are heavy...and I can't get the words out...I can puncuate anymore...words like specific...etc...I stumble when I talk alot.....My husband asks me to repeat what I say alot....I feel like people are staring at me..and wondering....I did tell my boss..but I haven't really shared all for fear that I might lose my job for someone who can communicate effectively...

My family doctor also put me on celexa (mild antidepressant)...and this has helped a little bit...to aid me in relaxing in social situations....

Has anyone had this problem??