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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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Senior Member
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I hope this means that next year you will feel great!!!!!!!
Take care!!!!! Erin ![]() Quote:
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Erin . |
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#2 | |||
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Senior Member
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![]() I know it is embarrassing, but you have a disease - granted, our disease is one that does have life long remission, but it is still a disease............ Hang in there! I don;t think speech therapy will work, but hopefully someone who knows a little more will be able to help you with that one.......... ![]() ![]()
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Erin . |
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#3 | |||
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Junior Member
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Cricket...
I too started my original symptoms much the same way. My voice & my vision WERE my livelihood. I don't believe you need speech therapy. You don't have any impediment, EXCEPT for the fact that your muscles are too weak and don't have the strength required to 'make' the words happen. (You may find that your tongue feels like a dead-weight in your mouth as well). Mestinon alone helped me originally, however after my thymectomy, symptoms become worse, and adding steriods did help. Nobody enjoys going on them, but they are for our benefit. The fact that the Mestinon is helping some of the symptoms is a good indicator. My suggestion would be to discuss with your neurologist to start you on prednisone so that you can feel the benefit, and then adjust dosage as needed. There is only one way to find out if it will work, and that is to try. Best of luck....oh and remember... Life is great - even with additional weight! hahahahaha Lydia |
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#4 | |||
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Member
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Thanks! I am trying to hang in there
![]() I am going to back to my neurologist tomorrow. Hopefully, he will understand my denial..and help me get back on track! Cricket |
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