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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Judy, I'm ashamed to say that I don't know what mine is. My GP runs the thyroid panel every year, and always says it is within normal parameters, but I've never asked her exactly what it is. If I remember next time I'm there, I'll ask.
I just saw her Monday for what I had already suspected is gluten sensitivity. I had experimented on my own by cutting out gluten for a few days, then eating it again before my appontment, and based on the results of my few days gluten free, she figures I am gluten sensitive, at the least. She took blood for a celiac test. If I have celiac it would explain a lot of my symptoms. I'm currently 3 days completely gluten free, and the difference is absolutely amazing. But the most wonderful benefit I've gotten is that I'm not as fatigued. So I believe much of the fatigue I was attributing to the MG was actually from the gluten. It will be interesting to see if the celiac test comes back positive. If it does, that will make 3 autoimmune diseases for me, Graves' Disease, MG, and celiac. Plus-------TADAA!!!!(Sounds of trumpets blaring and drums beating!!) ---- I've lost 3 pounds since Monday. Hooray! ![]() ![]() Hugs, and cheers for me!
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Lois . |
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Lois,
Three pounds you lost, hooray!!!!!!!!!!!!! Twelve I found with this wonderful prednisone, BOOOOOOOOO......... Oh well, I don't have that pred appetite, so I think it should be easier to lose because I eat very healthy and am very careful. It seems that I have been hearing of a lot of people having celiac's, I wonder if it is becoming a epidemic or if I am just noticing it? Down to 24 mg of prednisone starting today. Have been on it since the first of Sept. I truly understand why it is considered the best/worse drug there is. On a positive note, the moon face has taken my wrinkles away and I must say I look like a healthy teenager!!!!!!!!!!!!!!! LOL I do try to find the good in most everything..................... hugs, Judy |
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#3 | |||
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Judy, how well I remember the one time they tried me on steroids. It was Dexamethoson instead of Pred, and it provoked a near crisis that put me in the hospital while he got the dose of steroids up to what he wanted it to be. I got every side effect of the steroids you could get, and came out of the hospital practically unrecognizable. My face went from normal to Halloween pumpkin in just those 5 days in the hospital! I can definitely picture yours just by remembering mine!
![]() hugs,
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Lois . |
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