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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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01-20-2009, 03:40 PM
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Just got through with my neuro......I'm going back in a few weeks for more IV IG - wow! Thought I was through with it for a while @ least.........I guess I'm not doing as well as I thought I was.............scary!!!!!!!
 I was really hoping that I could have my IV IG @ home - not meant to be, I guess, since there is a picc line involved........Don't get me wrong, I am very grateful to even be getting IV IG, I just thought it would be over sooner....... Still @ 60 mgs of pred - hopefully will go down after the IV IG - then the Imuran will be kicked up to 200 mgs a day............ What the heck!?! MG really sux!!!!!!! TRying to stay positive - I do have a family that I want to take care of and don't want to be a bitter, mean person, but am feeling lost today ..........Erin
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Back to the hospitalfor more IV IG!
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