After the last month when every week a knew symptom would seem to appear and i really thought i was loosing it how weak can you get breathing choking finding it more differcult to do simple things stupid tears would start
life was not fun!!!!!!!!!!!!!!!!!
So at last i've turned that corner my how cool are Pred's my breathing has got much better i hardly have any choking problems my knee's are less painfull thats a first since sep't last year ............
Only problem has been my double vision has got worse and my good eye throbs a lot but i'm sure that will be okay .
Two weeks then i get to tell my Dr then my Neuro .
life is good Alan

I am so glad to hear you are feeling better! Pred is a wonder drug - I love and hate it all at the same time.........

Good news is always wonderful!!!!!

Cant wait till you see your neuro!!!!

Erin

Hello Alan!

I just wanted to see how you are feeling today......Are you stronger? Are you better?

Let me know when you have some time!

Erin

Hey Erin
Hope your feeling stronger now the last few months has been quite a battle for you ....................
just a few days to go till i see Dr then Neuro Pred's have certainly made a big difference but even increasing the Pred's i'm still having problems stupid legs have got weak will let you know what he says.
take care take rest Alan

Alan,

I am so happy for you! I was told by my onc that steroids would cause muscle weakness in the beginning - in fact, I got stuck on a chair shortly after starting them........really embarrassing!

It is getting better! IV IG always makes me feel great! I'm on my 3rd day and plan on feeling amazing by Friday!

They make me wear a mask @ the hosptial for the my whooping cough...........the scary thing is that I look healthier than anyone else here!

I'll bet it is beautiful there with the snow! I would love to see some! How cozy! Add that and a big cup of tea and that is my definition of a perfect day............

Can't wait to hear from you!!!!

Erin