That does help, thank you, redtail.

I am not sure what anyof the weird symptoms mean, so it help alot when you tell me it happened to you, too.

I just usually find myself questioning what is happening, or if I am even really experiencing something to begin with. I am over 40 now, and they say the eyes get wonky...

I noticed I have been putting my hand over one eye to watch late at night. I usually just hurry up and turn off the TV so I can just ignore it!

Thanks for sharing. I appreciate it.

Like many of us Double vision effected me first mine has always been their they say seeing is believing but when a car passes you once and then again thats scary ........................
if the weak eye is working hard then its going to get tired
mine got really bad when i went on Pred's but has settled back
it is always good to know others are able to reassure you its certainly has me Alan

When it was really bad, I couldn't watch TV, drive, anything. I did notice that putting a bag of ice on my eyes seemed to help. In fact, my neuro had me put a can of soda on my eyes to check for MG.

It is hard, but the sooner you get your diagnosis and meds right, the sooner you will feel better.


Don't give up and don't ignore your symptoms. There is a lot that can be done for MG now!

Erin

I am newly diagnosed, I have had double vision like twice, does this usually get worse as the disease wears on? Does generalized MG mean you are getting worse?

Ocular MG means it only affects your eyes, and I have met one man who had this.

Generalized MG means it affects everything else, ie swallowing arms legs etc. I have left an answer in you post, so rather than answer twice I will let you read that, if it doesn't answer you questions, please feel free to ask more. I'm sure someone here will be able to help you.

take care
redtail

I had problems seeing for 6 months before I was diagnosed! The only thing that helped me was Prednsione.......The Mestinon did not do it for me. My eyes were literally rolling around in my head - too weak to focus - my hubby had to drive me the last few months, as no one really believed how weak I was............

If the meds do their thing, your vision will clear almost immediately - @ least it did for me!

Erin

So I had my Thymus removed 5/1/09, and it wasn't fun but i am not fully back to work and pretty much back to normal. However this last week my symptoms have been really bad, especially my vision. I was just stepped down from 35 to 30mg of Prednisone by my nero. I am also on 500mg CellCept 2x's a day, 4-5 60mg Mestinon a day, and MultiVitamins.
This week I have had really bad double vision, and been pretty symptomatic all week. I must say its pretty sad to go through the pain of surgery and see no short term benefit from it!! I am thinking of getting another round of IVIG, but I dont know if I can take the time off work to do it. Is there any other treatment schedules besides the 5 visits in a week plan? Thanks!

Regards,

John

John,

The thymectomy is not for short term gain. Your body still needs to heal back the damage that it has done to itself before you'll go into remission. You're looking a year to three down the road for the thymectomy to do everything for you that it is going to.

I didn't have to deal with double vision with my MG and not to sound glib, but have you considered an eye patch for when your vision starts to split? Obviously you still need to find the right drug cocktail to control the symptoms, but something on hand to deal with the double vision right away may be worth having.

Best of luck

Cheers,

Brian.

i had dvision luckily longer distance like driving and walking. have you ever tried a patch -i was ok driving if i closed 1 eye. not the safest but when it was constant it worked until i started on meds. good luck!!!

John,
I have double vision also, ALL the time, I find if I tilt my head to the side it helps a lot. I was also a computer programmer years ago but with my vision problem I gave it up. I now can do just about anything because I have trained myself, so to me it is like single vision, once you live long enough with it you become adjusted {30 years} . I hope yours eases up soon.