So I had my Thymus removed 5/1/09, and it wasn't fun but i am not fully back to work and pretty much back to normal. However this last week my symptoms have been really bad, especially my vision. I was just stepped down from 35 to 30mg of Prednisone by my nero. I am also on 500mg CellCept 2x's a day, 4-5 60mg Mestinon a day, and MultiVitamins.
This week I have had really bad double vision, and been pretty symptomatic all week. I must say its pretty sad to go through the pain of surgery and see no short term benefit from it!! I am thinking of getting another round of IVIG, but I dont know if I can take the time off work to do it. Is there any other treatment schedules besides the 5 visits in a week plan? Thanks!

Regards,

John

John,

The thymectomy is not for short term gain. Your body still needs to heal back the damage that it has done to itself before you'll go into remission. You're looking a year to three down the road for the thymectomy to do everything for you that it is going to.

I didn't have to deal with double vision with my MG and not to sound glib, but have you considered an eye patch for when your vision starts to split? Obviously you still need to find the right drug cocktail to control the symptoms, but something on hand to deal with the double vision right away may be worth having.

Best of luck

Cheers,

Brian.