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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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I have been having trouble with dv for the last few months. I was wearing a patch to drive and work on the computer.
I spoke with the eye doc and he said that prisms in my glasses would probably help, but it had to be my decision. I tried using IVIG to see if it would make a difference, but no change in the vision (energy level much better - I've been on IVIG for about 4 years) I finally caved and went back to the eye doc and they spent about 2 hours trying to get the correct level of prisms. Think about it, do I get the prism to correct my vision at Noon? 1:00 pm? 4:00 pm? - it's get worse as the day wears on! We settled on 4:00 pm (I see 2 of everything, one above the other, no overlapping, etc) I got my new glasses last week and they really work! Of course, I can't wear them until the dv gets bad (usually around noon), but they definitely correct the dv. I thought they would look like big googley eyes, but they don't look at different from my regular glasses, just a little thicker. For the first couple of days, everything had a band of rainbow light around it, but my eyes have adjusted and I don't see the rainbow any longer. They were expensive, but fortunately I have vision insurance and they paid all but a small portion. My glasses are expensive anyway because I have bi-focals and I add glare reducers, etc. Just wanted to let everyone know who has dv for a while, there is a way to fix it so you can continue to work. |
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"Thanks for this!" says: | erinhermes (08-13-2009) |
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Junior Member
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I also have prism in my glasses, and my sunglasses...and it doesn't help me at all. Don't get me wrong i'm MuSK Positive...so i do believe i'm a little harder to treat than most.
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