Originally Posted by erinhermes

I felt better after a few days - BUT I was also on IV IG at the same time. It was during my last real crisis, so I was on roids, mestinon and had that IV IG flowing into my veins as fast at they could give it to me........

I was started @ 10 mgs, doubled to 20 the 2nd day and by the 8th day I was at 80 mgs - @ 80 I felt GREAT!

Sounds like your neuro has things backwards........

I was told by my onc and neuro that steroids can initially cause pretty serious weakness - especially in the legs - learned that the hard way - got stuck - and that's why I was started on everything while still on the hospital.........

Hope you get some relief soon!

Erin

Originally Posted by ras1256

OMG - you read my thoughts!! I was just thinking that early on, it was recommended that I get a bracelet identifying me as myasthenic. I was still in denial then, but just was considering getting that done!

Originally Posted by Scots Kat

Hi ras1256,
I wear a medicalert bracelet and now carry a steroid identification card. I've never had to use either, but I guess it's just another precaution. If nothing else my medic-alert bracelet has been the start of many conversations, especially with my pupils - kids are very inquisitive and I otherwise probably wouldn't talk about my condition.

I've also heard of individuals who keep a list of their meds and an explanation of their condtion at their doorway in case of emergency. My husband is really well briefed, so I haven't done this - but probably should!!

Hope everyone is well.
~Kathy