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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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02-28-2009, 04:35 PM | #9 | |||
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Oh, sweetie! I am so sorry to hear you are feeling poorly...........
You just rest and get to the hospital if you feel like you can't breathe! Also, please, please, please do not drink anything carbonated! It may - only may- cause you to choke a little bit. I am not trying to scare you. I worry about you, though. We are in the same boat. Last year I was sooooooo sick and weak! It does get better! It was so hard having no one listen to me......... Do you have really low blood pressure? Mine is always really low - 90/60 or so....I don't know if it is MG related or what...all I know is that I can't stand it! My 16 yr old son, Devon has HIGH blood pressure 140/80 - and that really scares me. He has gone through so much with this stupid disease. I feel so stupid being afraid of needles......after all I've enough blood work....but they still freak me out! The worst part is the PICC line, but this guy Jerry is the MASTER! He got it in in under 5 minutes! 5 minutes! Feel better and please,please let your family take care of you! Just try and rest! Erin Quote:
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Erin . |
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