Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

Reply
 
Thread Tools Display Modes
Old 03-04-2009, 11:48 AM #1
erinhermes's Avatar
erinhermes erinhermes is offline
Senior Member
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Unhappy I don't even know what to say.....

Oh Kristie! I don't even know what to say..........You have been through so much already. I can't even imagine your frustration right now.

Scream!Cry! Do whatever you have to! You have earned that right!

I'm gonna ask everyone I know to pray for you. There is an answer. They just haven't found it yet!

Again - I am so sorry!

Erin

Quote:
Originally Posted by nemsmom View Post
Well I saw the doc today and they did have my biopsy results. Everything they tested for came back normal. But there were some enzymes they didn't test for so she is going to have them run those tests now.

She also wants me to go for a pulmonary function test. So I have to call and try to get that schedualed so I can have it done and just keep my appointment on the 17th.

If the rest of these tests come back normal she said we will have to take a wait and see aproach because she really doesn't know where to go from here.

Why do I get so close to an answer, a doctor tells me what they think it is, I look it up and think it fits, but then the tests say no that's not it?

I'm so tired of this! I just want to scream right now.

Okay sorry that was a little vent there, I'm really okay I will just keep on living life like I have been and hope for the best.

I hope you all are well today.

Kristie
__________________
Erin
.
erinhermes is offline   Reply With QuoteReply With Quote
Old 03-04-2009, 12:03 PM #2
nemsmom nemsmom is offline
Member
 
Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
15 yr Member
nemsmom nemsmom is offline
Member
 
Join Date: Feb 2009
Location: Oregon Coast
Posts: 503
15 yr Member
Default Hi Erin

Thank you, you're so sweet.

At least this doctor isn't saying, well the tests don't show anything so it's all in your head. She still believes there is something physically wrong, she just doesn't know what.

Thank you so much Erin, you have been so helpful in the last month or so.

I just don't get it though, MG really seemed to fit for an answer. I know it's hard to diagnose but is there any chance all of their tests would be normal an I still have it? Not that I want to have MG, I want an answer.

Ugh I feel like I should just be in bed today. I wish there was someone who could take my kids for a few hours so I could rest. But that's not gonna happen so I will just have to put on a movie and hope they rest with me.

How's the IV IG going, still feeling great? I hope so.

Have a good day.

Kristie

Quote:
Originally Posted by erinhermes View Post
Oh Kristie! I don't even know what to say..........You have been through so much already. I can't even imagine your frustration right now.

Scream!Cry! Do whatever you have to! You have earned that right!

I'm gonna ask everyone I know to pray for you. There is an answer. They just haven't found it yet!

Again - I am so sorry!

Erin
nemsmom is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Is this normal? seiko Alzheimer's Disease 12 08-05-2009 02:00 PM
Is this normal? Erin524 Multiple Sclerosis 14 11-23-2008 10:21 PM
I'm not normal--get over it. Blessings2You Multiple Sclerosis 13 03-18-2008 12:01 AM
whats normal for TOS richard d Thoracic Outlet Syndrome 9 11-26-2007 03:18 PM
Normal or Not? screwballpookie Reflex Sympathetic Dystrophy (RSD and CRPS) 2 07-17-2007 09:55 AM


All times are GMT -5. The time now is 06:09 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.