Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 03-04-2009, 03:05 AM #1
matt's sis matt's sis is offline
New Member
 
Join Date: Mar 2009
Posts: 3
15 yr Member
matt's sis matt's sis is offline
New Member
 
Join Date: Mar 2009
Posts: 3
15 yr Member
Default Brother dx'd with MG

Hello everyone...My 23-year old brother was just diagnosed with MG in November 2008. He was started on Mestinon, and a chest CT revealed an enlarged thymus gland. He had thymectomy on 2/2/09. He did well, and was d/c'd home on 2/5/09. He started having issues swallowing, and choked on food. He was readmitted on 2/13/09, and thought to have had a cholinergic crisis. He did well and was d/c'd on the Mestinon and Prednisone 10 mg. He started having issues again with difficulty eating and swallowing, and was readmitted on 2/23/09. The neuro decided to start high-dose steroids, but instead of improving, he got worse---weaker and weaker, and has now weakness in arms and legs. He couldn't even hold up his head and walk! Neuro tapered the steroids and he got 2 rounds of IVIg. It's been 2 days since the last IVIg, and showing a little improvement, but still weakness in arms and legs.....how long did it take you to feel improvement after IVIg? I just my brother to get better! It's ben so frustrating!!!

Thanks
matt's sis is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
I have just been Dx'd with Lyme Quahog Lyme Disease, Shingles and Other Microbial Conditions 12 11-06-2009 05:34 PM
TV: Big Brother 10 Bearygood Books, Movies, Music and TV Talk 514 09-02-2008 09:09 PM
I gave blood before I was dx'd BaxterTheBunny The Stumble Inn 5 09-02-2008 08:59 PM
Fox News Weatherwoman dx'd w/ MS BaxterTheBunny The Stumble Inn 1 03-10-2008 12:58 PM
Checking in, update on "Dx'd" Craig NeuroNixed Craig Multiple Sclerosis 2 03-20-2007 11:19 AM


All times are GMT -5. The time now is 04:06 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.