I also have problems with heat. Oh yeah Hi I am new here. Tho not new to MG.

I avoid heat as much as possible. I break out in hives and welts in the heat. I just do my best to avoid it, but it sounds like I should try the cooling bandannas and stuff. I use sunscreen and still get hives, I know its weird. I just wear really light long sleeves if I go outside on really sunny days. Yeah most of time its just not possible. Too hot!

Hi ya'll.
Erin, have you checked out the cooling vests yet?
I've been kinda really involved with my "other issue" so I didn't order one yet.

The other day when it was about 75 and very sunny here I wanted to go out and get some vitamin D (sun). I stuck an icecube in my cleavage , put some ice in a cap, took a glass of icewater with me and went outside.

It worked! Not real attractive with the ice melting between my breast - I'm sure it looked like I was sweating my butt off, but at least I could stay out there longer than 2 minutes!

I don't get hives or anything, just totally, completely wiped out in a flash!


Try this and see if it helps. If it does, you may want to make that vest a priority.

Hey there! You are gonna this site! It has been truly wonderful for people like me!

You get HIVES from the heat? You poor thing!

What meds are you on? Do you have a good neuro? A support group?

When were you dx'ed?

I sm not trying to be nosy, but I am still "kind of " of newbie - Diagnosed March 6th of last year and had my thymus removed April 22nd..........

Can't wait to hear from you!

Erin