It is totally MG! My neuro checks my eyes every time he sees me.......no doubt about it!

THe frustrating thing is that so few people HAVe what we have that they just don't get it - plus we don't always have the exact same symptoms........

Hang in there! We are all pulling for you!

Erin

What I wouldn't give for a diagnosis!!!!! A positive antibody test, symptom after symptom. What more do they want? Sorry to vent but - aaaarrrrghhh!

I get a feeling like my eyes are shaking from side to side very quickly, a TOTALLY wierd feeling.
Thankfully it was happening when I visited my optometrist(not a stressfull situation in the least, he is gorgeous, both looking and in terms of being understaing and he did help diagnose me, unfortunatley he is married,and to a very nice lady so I guess thats ok!!)
When I asked him if he could see it, he said yes. I was glad It was not in my head. It usually happens when I'm very tired, and rights itself after I've rested
take care
Kate

Hi Guys, I have been having problems with my eyes for about 8 years. It started out I had Strabismus, which mean my eyes were not seeing together correctly and one would sort of shoot out of alignment, then Later I got diagnosed with Nystagmus which is an eye movement. I don't feel them moving, but if other were to look at me closely they would say it looked like I was reading, or looking out the window of a train at the scenery. Now this year I am diagnosed with MG. Just think it is all related. I also have the droopy eyelid going on.

I often get this problem when driving. It is scary isn't it. I have to drive 100 miles to my Dr and sometimes feel like I cannot keep the eyelids up and see. It comes on so suddenly and you can't seem to stop it. I don't have any answers - sorry - I am trying to be diagnosed myself.

Rest is the key with a good pair of sun glasses. Try getting a stick on eye patch and wear it whe you can to rest the eye. Is one eye worse than the other.... I get double vision with very tired eyes. If I do not rest and am rundown I have serious vision issues due to MG. How do you find light... I like things dimmer more relaxed on the eyes even in the home. Snow is the worst when driving and headlights at night on a bad day cause problems. Try resting one eye at a time. It works for me. I get totaly upset when my eyes are not working causes stress and only makes it harded to get back on track.Double vision lots. If I close my eyes for a rest it makkes it harder to get the single vision. Head tiliting at times is helpful to make it home.If you cant pull out of the double vision, cover one eye and it will be single. All this is very scary, I have had this off and on for twenty years. Rest those eyes, and get rid of stress, or you may have an illness comeing on. Take Care hope this help....Mother of three thought only I felt this. Winter to Summer also pose problems...Would liike to learn more .....Thanks Lori

I too have times when I have trouble closing my eyes, I thought it was just me because everyone always complains about keeping them open. It does take work to open ones eyes {in more ways than one} Having been DXed over 18 years it amazes me to learn something new everytime I come here.

Welcome to all the new visitors to the site, you will find answers here and learn so much!

That reminds me. Does anyone else wake up with a dry feeling eye and a lid that is not working and open ? I sometimes have to drag the lid down over the eye and then it does not feel dry any more and gradually gets back to normal ( whatever that is lol)

I have problems keeping my eyes closed tight too when I'm really weak...For example, after I have a shower, and come out of the bathroom, there are 'halos' around all the lights in my house. I realized it's because water accumulates on my eyes because I can't close them tight enough- it's kinda annoying...lol...I also find that my eyelids are swollen a lot, especially in the mornings...I guess it's from keeping them slightly ajar all night....

Lately, last couple of days, my left eyelid is lower than the right one...I never had 'droopy' eyelids before....This is a new one...

Funny, I had never heard of this problem until it was brought up on this thread. What I found in the mg book when I looked it up said exactly the same thing as you here are saying. The author of the book describes problems in keeping the eyes closed in the shower and washing hair, of not being able to close one eye while leaving the other open while taking photographs, and of patients having difficulties completely closing their eyes during sleep and having irritated eyes upon awakening.

I haven't had any of these problems (yet - knock on virtual wood ). I'm glad you all were able to connect and be reassured that it wasn't just you!

Ally