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Struggling To Keep My Eyes Open

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Old 11-09-2009, 02:20 AM #1
bluesky bluesky is offline
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Quote:
Originally Posted by Lori Denise View Post
Rest is the key with a good pair of sun glasses. Try getting a stick on eye patch and wear it whe you can to rest the eye. Is one eye worse than the other.... I get double vision with very tired eyes. If I do not rest and am rundown I have serious vision issues due to MG. How do you find light... I like things dimmer more relaxed on the eyes even in the home. Snow is the worst when driving and headlights at night on a bad day cause problems. Try resting one eye at a time. It works for me. I get totaly upset when my eyes are not working causes stress and only makes it harded to get back on track.Double vision lots. If I close my eyes for a rest it makkes it harder to get the single vision. Head tiliting at times is helpful to make it home.If you cant pull out of the double vision, cover one eye and it will be single. All this is very scary, I have had this off and on for twenty years. Rest those eyes, and get rid of stress, or you may have an illness comeing on. Take Care hope this help....Mother of three thought only I felt this. Winter to Summer also pose problems...Would liike to learn more .....Thanks Lori
Welcome, Lori Denise!! Holy cow, twenty years is a long time to be struggling with this.

You gave some terrific advice. My eyes are always worse when there is bright sun out, my eyebrow falls and my eye muscles don't cooperate and my vision is blurry. I just didn't have the presence of mind to put on the sunglasses. Next time I will. Actually next time I'll put on sunglasses and pull over and call and get some help.

Do you have purely ocular mg? Or is it generalized mg. I can't imagine driving in the snow with that kind of challenge. Around here, everything just shuts down and we all make hot cocoa to hand out to the masses of cold neighborhod kids running through our houses on their way back up to the top of the hill for a nice slide down again. Ya, I know what you're thinking and it's true: we're snow wimps. It sure is a fun time though!


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Old 11-09-2009, 11:11 AM #2
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I have problems when sleeping. My eyes dont stay shut. I end up with very painful dry eyes because of this.

Does anyone else have this? I think its because I dont take to take mestinon during the night. When I have a shower I have to make sure I took mestinon an hour before otherwise I wouldn't manage it, so I dont have problems with getting water in my eyes.

Thanks
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"Thanks for this!" says:
Nicknerd (11-09-2009)
Old 11-09-2009, 02:34 PM #3
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my neuro-ophtalmologist gave me lytears, because she said that myathenic patients never blink enough and that is why their eyes tend to be dry.

the SFEMG done on the occular muscles is as far as I know, is based on the muscles that close the eyes, not the ones that open them.

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Old 11-09-2009, 02:37 PM #4
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Hey Blusky,

Yeah! I definately have the problem with not being able to close one eye. Sometimes I attempt to wink after making a joke, and I feel like a basket case because I can't do it properly...Kinda ruins the joke...lol
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Old 12-19-2012, 05:52 PM #5
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Default Eyes rolling around/cannot focus
On Nov. 19th I was sitting by myself at work and it felt just like a curtain was going down from the top of my forehead just past my eyes. My eyes started to jitter around in my head ... rolling sideways, backward and so on. I had to close my eyes as I could not see. I was fully concious during this episode. It lasted about 2 minutes. I was fine when it passed. On the 9th of Dec. I was sitting in bed and the same thing ... curtain dropping etc. and likewise, after about 2 min. this incident passed.

I am a cancer patient, stage 4, and am taking Arimadex. I was thinking this might be the cause. I am not going to rush off to the Dr. as I just cannot face all the tests that this might entail. Just curious if anyone has ever heard of this or been thru this before.
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Old 12-20-2012, 11:20 AM #6
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I have had the problem where after I sneeze, or wink/blink my eye is stays extra droopy afterwards and doesn't open as fast.. and when my symptoms exacerbate I must have incomplete closure, especially at night too..
Veronika- curtain closing sensation with your eyes can be a sign of other problems too, if it's not your actual eyelid closing that appears like the curtain- . retina problems I believe (can't remember exactly).. unless your talking about your actual eyelid closing, I would mention it to your dr.. but I can imagine your sick of testing/dr's appointments, however it might be as simple as seeing an opthamologist for one visit?
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