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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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04-08-2009, 10:44 PM | #1 | ||
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Annie, you're absolutely right. I had no business driving like that! I had never experience a problem that bad and I wasn't even thinking straight, I was trying so hard to keep my eyes working. Next time I'll just pull right over and call someone to pick me up. The air conditioning is a really good idea too.
Erin, thank you for telling me about your experience. I didn't know what to make of what happened this morning. I couldn't remember anyone describing this eye problem and I was so confused. Is this more evidence of mg? Or is this something else? Anyway thank you both for telling me! I've been checking in all day, wanting to see what everyone thought. It's so good to be able to tap your mg wisdom! Ally |
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04-08-2009, 10:47 PM | #2 | |||
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It is totally MG! My neuro checks my eyes every time he sees me.......no doubt about it!
THe frustrating thing is that so few people HAVe what we have that they just don't get it - plus we don't always have the exact same symptoms........ Hang in there! We are all pulling for you! Erin Quote:
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04-08-2009, 10:55 PM | #3 | ||
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04-09-2009, 01:21 AM | #4 | |||
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I get a feeling like my eyes are shaking from side to side very quickly, a TOTALLY wierd feeling.
Thankfully it was happening when I visited my optometrist(not a stressfull situation in the least, he is gorgeous, both looking and in terms of being understaing and he did help diagnose me, unfortunatley he is married,and to a very nice lady so I guess thats ok!!) When I asked him if he could see it, he said yes. I was glad It was not in my head. It usually happens when I'm very tired, and rights itself after I've rested take care Kate
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"Thanks for this!" says: | bluesky (04-09-2009) |
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