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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Senior Member
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Hello and welcome to Neurotalk! You are going to meet so many wonderful and amazing people here!
I know the first time I met with my neuro, he did the ice test with me as well - it gives the eyes a chance to "rest" for a bit and if they "look" normal that is a pretty good indicator of MG - at least according to my neuro....... Is your hubby on any meds? How is his energy level? Some people only have ocular MG - that would be great! Most of us (myslef included) have the general type - fatigue, weakness, etc, problems swallowing, the "norm" for us until we get on meds - prednisone has been GREAT for me! I do have side effects, but the quality of my life has gone through the roof! It DOES get better! Once your hubby gets his dx, and is on his meds he will feel GREAT! Again, welcome to neurotalk - you are gonna love it here! Big hugs! Erin ![]() Quote:
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Erin . |
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#2 | ||
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Junior Member
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He's had quite a bit of fatigue for a while, but that may be stress-related - he works more than he should. He's had a number of small, probably unrelated symptoms/issues for years, but he's gotten so used to being told it's in his head or that there's just no good explanation for the aches/pains/not feeling right that I doubt he knows what is connected to what. He pretty much blows off anything medical now until it gets to the point where it can't be ignored.
We're hoping at this point it's just ocular and stays that way - I consider the 16-20% number I've been seeing tossed around for ocular MG not progressing to generalized to be pretty promising. He doesn't think he's noticed any muscle weakness. He's had the eyelid droop for six months - his PCP said she didn't think it was anything when he went in for something else and mentioned it. So we're not seeing a rapid decline, I don't think. |
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