I was also in a car accident years ago that damaged both my neck and back. I have 2 discs that are at a funny angle due to the wreck and have constant headaches......

Wow! I wonder if there is something to this?

Big hugs!
Erin

Thanks for starting the thread, Lizzie.

I THINK my MG may have ties to a severe illness I had when I was 18. It itself was'nt MG but I have a hard time believing that somehow that didn't have something to do with my problems now. Most significant reason is that my blood count was all screwed up. 3 x the white cells and almost no red cells being made.

They never dx'd me then, but let me out of my 16 day hospital stay with the dx "fever of unexplained origin". I was mostly fine once I got recovered from that, but what a flip flop on my metabolism. Prior to that I was such a high energy person that I was accused of being a speed freak (1970's term - told ya'll I'm OLD!), but I didn't do drugs.

Afterward, I still was fairly energetic, but not the same. It was more like nervous energy in bursts.

Then in 1991 I was rammed into while stopped at a light with no where to go by a guy doing about 55 that had fallen asleep (5:30 at night). Unfortunately I sat and watched him coming in my rear view mirror and tensed up. My surgeon said my neck was still like hamburger 2 years after the accident when I had my 1st surgery, and I have since had 2 more on different levels.

Swallowing issues surfaced then, but I was on muscle relaxers, pain meds, Naproxyn so I don't remember a lot and don't know how much else could be attributed to all the sleepy eyes drugs they had me on. By 1995 is was starting to notice a reduction in my stamina & strength. 12/1/96 I went to the floor with no muscle response at all for a few minutes, then minimal. I had my prelim dx of MG early 1997, but I've posted the fun I went through at that time. It was removed and the 2nd surgery to my neck happened. My "for reals" dx didn't happen until my next major bout in 2003.

You do have to wonder about the spinal trauma not just kicking this stuff off, but maybe whacking out the system. For me though I think it was the kick off, with the teen illness being the real beginning.

P.S. - Why do I keep having stuff that can't be diagnosed? The 18 yr old thing, then so much trouble with the MG dx, now (and '97, '03) the secondary issue I have. Shoot - even my white blind spot in my R eye isn't dx'd but has to be watched! I really HATE this stuff!

OK, that was my rant for the day - sorry. I seem to be needing those more and more often the longer this goes again!

Loves to you all! I'm so glad you're all here.

Ok - here goes:

A few years ago we went to Belize - we came early (thank God) due to a family emergency and the morning after we returned, my hubby and I both came down with some really weird (and still totally unknown) illness - I'm talking 104 fevers and headaches so bad that pain meds wouldn't even touch - it was scary!

Then I became really, really ill and when I was finally dx'ed had thousands of little "spots" on my lungs, along with SEVERE anemia - needed 2 units of whole blood(unknown origin), heart problem, and the like - it was CRAZY! I would wake up with a nurse standing over my in ICU shaking me (blood pressure was waaaaaaaaaaay low) or a dr. telling me a "may" need a pacemaker..........


But before all of that - during my accident time I DID notice that I felt an electrical "charge" in my feet and legs and lots of fatigue - and I was only 20 @ the time........It was strange and I have no idea what caused it, but am experiencing it again now...........AUGH!!!!!!

What is going on with us? Seriously - what is it? I even have abnormal saliva - very, very acidic - needed 12 shots to numb my mouth last time I had a root canal - and worse, my body metabloizes it super fast, so the pain comes back! Now I think I may have sciatica (sp) - shooting pain down my back and left foot - can't wait to talk to my doc on Monday.........I have lots of questions for him - I have gone so far as to ask my folks if I was conceived anywhere near agent orange - -lol!

I just cannot figure this junk out!

Hope everyone else is having a better day!
Erin

Went to the hosp today to have my PICC line flushed and was really really weak - was afraid I'd fall before I got inside so it has been a BAD day!

Sorry for the rant!

Wow, Erin, that sounds awful! They never found out what it could have been?
Annie, I know, sometimes, I look heaven-ward, and ask, Lord, seriously, another one?
I've gotten so tired of doctors ordering labs to check one thing, and they find another.
I have told my doctors before, Okay, I'll let you test for this, but Please, if you find anything else, just quietly treat it, and don't tell me. Other wise, my mental state is really goind to haywire. At times, I do break down and cry, but I think it's good to have those moments, just to let it out, and then get on with living life to the fullest, at least as much as I can.
You'll have to tell of your experience with the B12 problems you've had. It's very informative, and will help so many, and it can go hand in hand with MG. At least according to my Neuro it can.

You know everyone, I really think there is something to these injuries, or medical issues we've had that helped in bringing on MG. I really do.
Especially with the spinal cord. When one thinks of all that the spinal cord does, I have no problem believing a damaged one can bring it out.
I just wish there were a cure.
I really relate to the having things they can never find the answer too, or figure out what it is. That's how I felt for the longest time, to the point where I didn't want to even speak up about anything new that came up. Just didn't want to go through all the horrible tests to be told, "everything" is normal. And inside, I'm screaming NOooooooo, It's Not Normal, Something is Wrong!
Love Lizzie