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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Senior Member
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Hello all! Just want to vent today!
Bad, bad day! I went in to have my line flushed and was barely able to walk the 1000 ft to the front door - had charlie horse pains this morning and was really, really weak.........hating MG more than ever today! ![]() I know the charlie horse pains are b/c I haven;t taken my potassium in a few days - no idea how imortant it was to take EVERY day - even though I am also on prenatal vitamins - pred is just so flipping hard on the body! I'm also going to take a leave of absence for a while - until I get stronger - I just really hate being housebound all day......but I need to rest until I am stronger! I cannot wait to see Dr. I on Monday and see what he says. My big "fear" is that he will make me have the plasma exchange AGAIN - hate that one - they always "knick" my nerve - add to that the fact that my platelet count is high, so I scar internally and they really have to dig hard to get through it and you have one ticked off lady - I was fighting with the guy last time as he was placing the line - only me! LOL What a junk day! *sigh* Erin ![]()
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Erin . |
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