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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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I am now on a "management" program to keep my MG @ bay - 1 week a month for several months now.
The FIRST time I had it, I felt it IMMEDIATELY! I am not joking about that! ![]() I was told by one of the nurses that IV IG is still considered "experimental" therefore lots of neuro's do not use it. I swear by it though! I was also told that it can be had on the kidneys - so when you have it done, make sure to drink lots and lots of water! I get 500 mL for 5 days in a row.......much better than the mega doses that other people get! Take care and hope this helps! Erin ![]()
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Erin . |
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