Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 04-28-2009, 04:44 PM #4
erinhermes's Avatar
erinhermes erinhermes is offline
Senior Member
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Thumbs up Hi mm80!

I am now on a "management" program to keep my MG @ bay - 1 week a month for several months now.

The FIRST time I had it, I felt it IMMEDIATELY! I am not joking about that! Now when I receive it, it tkes a few days to fully feel the effects - effects that last about 3-4 weeks.

I was told by one of the nurses that IV IG is still considered "experimental" therefore lots of neuro's do not use it. I swear by it though!

I was also told that it can be had on the kidneys - so when you have it done, make sure to drink lots and lots of water!

I get 500 mL for 5 days in a row.......much better than the mega doses that other people get!

Take care and hope this helps!
Erin
__________________
Erin
.
erinhermes is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
IVIg matt's sis Myasthenia Gravis 3 03-04-2009 04:13 PM
Local Restaurateur Nears Completion of a Long, Long Trip BobbyB ALS News & Research 2 11-24-2008 08:38 AM
Could you separate this forum into Mac users and PC Users? ronnie Computers and Technology 1 10-04-2008 04:08 PM
economy releif check brandonwall Social Chat 22 05-20-2008 06:55 PM
Long-term followup for Copax users pantos Multiple Sclerosis 0 05-08-2007 10:03 PM


All times are GMT -5. The time now is 04:58 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.