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IVIg users - how long does releif last???

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Old 04-29-2009, 05:42 AM #1
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Default Ivig
I'v been on IVig for over 9 months. Once a month and the Dr. took me off of it this month Didn't do anything for me. But I guess everyone is different. Good luck. Bev
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Hello everyone,

I know everyone may have individual results / releif but was just wondering those of you receiving IVIg how long do you get releif from your usual MG symptoms and how frequently are you receiving IVIg?


Me currently had my first treatment 3 weeks ago and I noticed releif after 2-3 days, but now just under 3 weeks I feel as though my MG symptoms are slowly creeping back, my next treatment is next thursday, and certainly look forward to it.

If IVIg is so good, why is it not so common of a treatment and does anyone know are their any long term side effects to receiving IVIg???


Cheers,

Melissa
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Old 04-29-2009, 07:21 AM #2
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Default Erin,
How on earth do you get your insurance company to cover so much IVIG?
I usually need it 3 times a year and getting our insurance company to cover it is extremely difficult!

Jenna
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Old 04-29-2009, 10:46 AM #3
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Smile Hi stayathomemom!
Hey there! The first few times I had it, I was in a full blown crisis, so no prob - there.

I guess I just have a neuro that fights like heck to get it for me! I guess the insurance company figures that it is cheaper than time in the ICU - LOL!

We have Humana - what type do you have?

Big hugs!
Erin
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How on earth do you get your insurance company to cover so much IVIG?
I usually need it 3 times a year and getting our insurance company to cover it is extremely difficult!

Jenna
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Old 04-29-2009, 05:32 PM #4
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We have Humana - what type do you have?


Erin,
We have Cigna...need I say more?
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Old 04-29-2009, 06:24 PM #5
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Default Hey stayathomemom!
I don't know enough to know what type cigna is............sorry. Are they really bad?

Erin
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Erin,
We have Cigna...need I say more?
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Old 04-30-2009, 06:58 PM #6
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Default
I am one of the lucky ones that has a severe reaction to it, I have to have IV pred. before I take my treatments. Without the extra ped. I start a fever immediately goes up to 106 & am covered in hives, big ones all over ! High dose pred. keeps it at a do able level, I get a great boost though from it, & it starts to fade 6 weeks.
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Old 05-01-2009, 02:17 AM #7
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I get 1 infusion of IVIg every three weeks - lasts about two and a half weeks for me so I have a few days either side of the infusion that I don't feel very strong
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