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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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05-03-2009, 11:11 AM | #1 | ||
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Junior Member
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I was Googling the other day & came across a site about "rebooting" for MG. Has anybody tried this? If you have, what does it involve and does it work?
Jenna |
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05-03-2009, 12:06 PM | #2 | ||
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Member
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Here's an abstract from a paper done by researchers who have done the procedure:
Quote:
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05-03-2009, 01:44 PM | #3 | |||
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My Neuro doctor tells me my immune system needs a reboot, when he is refering to my IVIG, it gives you all new healthy cells, gets rid of the old damaged ones.
Mary |
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05-03-2009, 02:25 PM | #4 | ||
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IG is kinda like plasma exchange though isn't it? It is a clean out, not a reboot?
In computer terms, a reboot is a complete restart - refreshing all memory (RAM) and clearing all of the crap out. A clean out (plasma exchange) would be like manually going through and deleting all of the temporary files that are floating around. Both are beneficial, but they do different things. Brian. |
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05-04-2009, 10:07 AM | #5 | |||
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http://www.longevitymeme.org/news/view_news_item.cfm?news_id=3077
http://www.medicalnewstoday.com/articles/64250.php http://www.futurepundit.com/archives/005922.html http://www.medicinenet.com/cyclophos...tract/18567882 Here are some sights that might help you. We were just talking about this in our yahoo group. It does sound promising. I wouldn't mind trying it. Love Lizzie |
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05-04-2009, 10:29 AM | #6 | ||
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Junior Member
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This rebooting is something I'm really going to research and seriously consider.
My two children are just starting elementary school this year and I have to consider all of my options. If I am going to have to go away for this treatment for any amount of time, I'd prefer to do it when they are both a little older and in school all day. Jenna |
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05-05-2009, 11:00 AM | #7 | |||
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[FONT="Comic Sans Jenna, I wish I could be rebooted from head to toe. Actually I sometimes wish there was a body part dealer, like cars, we could go in, and say, hey, I need a new immune system, new lungs...new kidneys..etc. It would make things so much easier.
But this rebooting thing, sounds very promising. Hope it works well. Love LizzieMS"][/FONT] |
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05-05-2009, 07:12 PM | #8 | |||
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Senior Member
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I need to print this up and show it to my neuro------I wonder why more people haven't heard of it......
Thank you! Erin
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Erin . |
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