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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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Senior Member
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Hey there! Thanks for making me feel like I'm not nuts.........I don't like vacations as it is, but my hubby loves them and really DESERVES this time and I love HIM so I go! I would much rather go in an RV, but Mike likes to fly, plus we have to get to Canada and by the time we got there it would be like a scene from that movie with Jack Nicholson - you know "redrum", "redrum" - lol!
MG is just scary! That is all there is to it! I'd love to take my dr with me, but no such luck! LOL! Flying is another fear of mine - did I mention I'm OCD with control issues? We have had some really close calls - emergency landings and such - and that did not take the edge off for me! But, Mike does deserve this. He is the best! When we are in town we can never get away from customers and he now has high blood pressure. I've got to keep him around! I'd be the crazy dog lady with 50 dogs or something like that - can't turn them away! Alaska will be great! I've been there b/4 and loved it! It is so beautiful and pristine..........We may go fishing in Ketchican and take the train in Skagway - they were a huge hit b/4.............. How was your weekend? ![]() ![]() Quote:
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Erin . |
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#2 | |||
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I'm glad to read that you fully benefit from your IVIG's which make you capable again to do things you were doing "before"…
I would like also to point out that, if wonderful husbands are a blessing, wonderful wives do also exist… I think also I pretty well know how you feel about your projected cruse to Alaska, we will be flying next week to Sicily for an 8-day tour, that will be our first "big" vacation since my MG started and I am also a little nervous, will every go smoothly? I liked to travel (and still do) but I'm doing it also for my wife, same as you… Maurice. |
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#3 | ||
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Erin, you are such a hoot!!! After my neck surgeries, the scars stuck out really bad (they are on the front of the neck) and people looked at me in horror. I finally got really honery and told them I was mugged and had my throat slit! You should have seen the reactions! I did tell them the truth then, but it was fun (sick, I know - my daughter says I'm evil).
I'll bet they were looking at how goooooood you look though, like you said - you have BOOBS!!!!!!! I understand your worry about the cruise. I get nervous just about trying to go to the store, and after all your problems I certainly understand the hesitance to get too far from your doc. How soon is the cruise? You definetly need to be sure that the doc on board is aware that you have MG, your problems with it, and has information about what to do. You can get on MGFA's website and request or download information for doctors. You may also want to see what your doc has to say about that trip at this time. I hope you are able to go! That would be so fun! Take care of yourself! Make sure your PT is aware of your MG too, so they don't make you push too hard. Loves ya!
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Becky |
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#4 | ||
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Oh Erin, I am so happy for you .... finally some good news!
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"Thanks for this!" says: | erinhermes (05-11-2009) |
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#5 | |||
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Senior Member
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You are toooooo funny! I wish you lived closer! I think we could be the best of friends!
We have the same dark sense of humor! It is a rare and wonderful thing! Love it! Trust me - they aren't looking @ me! Maybe my ginormous boobs or my PICC line, but not my face - not now! The cruise is in July - perfect timing for the HOT Texas summers! I told my neuro about it, but am still scared! I should have married a neuro - but hindsight is 20/20, huh? Hope you are having a great day! Erin ![]() Quote:
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Erin . |
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#6 | ||
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Well, with that cruise being in July that's a definite positive. What a great time to have an escape to a cooler climate! I sure hope it all works out and you can go COMFORTABLY.
I bet we would have a really fun time together. Wouldn't it be neat if we could all plan a place and time that we could all get to meet each other? I'm afraid that would be tough, considering how spread around the world we are, and the ups and downs that don't happen to everyone at the same time, but it sure would be fun! Maybe someday we will be able to at least get a few of us together. My best friend lives in Amarillo, so maybe someday I'll get to take a long vacation and go tooling around Texas visiting there and you! I just need to quit having to use all my vacation time at work for stupid medical stuff!!!! Talk to you soon!
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Becky |
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#7 | |||
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Member
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A whole new wardrobe! Woohoo
![]() I hope you get to feeling better now! Steph Quote:
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#8 | |||
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Senior Member
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Hey there! Great day today! It was hot, but I was able to get out of the house for a while and help my hubby! YAY!
We are so lucky to have such amazing husbands! What a blessing! Hope you are feeling great today! Big hugs! Erin ![]()
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Erin . |
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#9 | |||
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Member
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Yes, good husbands are a blessing. He has been so patient with me...especially with all of this mess. God sent me a few wonderful angels to watch over me... (my mom and my husband)!
![]() Today is a much better day...looking forward to tomorrow...since so far this week...everyday has been better than the last....I will be glad when headache is completely gone! ![]() Steph |
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#10 | |||
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Junior Member
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I am very curious about your efforts to get on disability. It is looking more and more like I might have to go that route. Anything you can tell me would be a big help.
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