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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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05-08-2009, 10:07 PM
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Hello all! Just finished with my monthly IV IG - next month should be the last one for a while
 !My neuro also reduced my pred to 30 - so hopefully I will be a little less "puffy" and be able to lose some weight. On the positive side, my DH bought me a whole new wardrobe - see? There is some good to come out of all of this! All of my blood work came back GREAT - I guess all of those supplements are really doing there stuff! My neuro did reduce my IV IG to 150 mL an hour - down from 360, just in case - doesn't want me to have kidney damage! I just laughed! I am a walking pharmacy as it is! Also got the results back from my MRI - bulging discs are the culprit - who knew they could hurt that much? He scheduled physical therapy for me, but until then I am going to take Becky's advise and ice down and then heat my back and take my pain meds............I refuse to be in pain in addition to everything else. I was able to go shopping last night for gift bags for all of my nurses. They have been so kind and loving to me! I am going to try and get disability - met a really sweet girl with Lupus who receives it and it has really helped her out.......she has a great lawyer! I also have an appt with an oral surgeon on the 19th to discuss implants. Great day, but boy am I tired! I am going to help my hubby with his radio show 2morrow and then be a BUM all weekend! It is going to be GREAT! Take care! Erin 
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Erin . |
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