Thank you for the encouragement guys!

Yes Brian, I do agree that humor is indispensable!! In fact it makes our lives much better off! Found a lot of it in the posts that all of you leave behind too. And thanks so much for all the wisdom especially the links that you post!

Thanks Erin! Your love for everyone around here touches me too. Am so glad whenever I feel aches in my body, as the aches definitely beat not feeling anything at all. Met someone who has been paralyzed from the neck down since he was 18 (he's close to 50 now), and I just feel so blessed that I'm still able to feel. Am so glad you found a fabulous church! My movement's limited so haven't been able to get to church for a while.. But there's lots of videos online to watch!! Whenever u need someone to talk to, feel free to drop me a mail! "A day in the life of a MG.." That sounds interesting.. It'll be fun to see what we all do in a day!

Thanks Mary, you're a great joy to know too! You are a very strong person as well, and your story inspires me. Let's all run together, and beat MG hands down!

Thanks Melanie, managed to locate some good neurologists, and am following up with them. One of them recommended someone overseas so may be flying over too. Anything to get my symptoms sorted out!

Connie, did they actually give you a DX of Myasthenia Gravis? Seems you are a fighter with a true spirit. Make sure you push those Dr.s and don't let them get away with "it's in your head" have you at least had a tensilon shot test? You sound like you need medication and or plasa exchange right away. I am glad you found this sight and hope you make many friends. This is a great place to share happy and sad days. Welcome!

Nope, they've not given me a DX of MG. Thanks so much for your encouragement Joanmarie! Guess this MG brings out the fighter in all of us..

I've not had a tensilon shot test, my MG fluctuates a lot in one day as well, so I'm considering working myself out so that when I see my neuro, my condition's at its worse so that he can do his best to find out. I've only done an emg and am waiting results on my antibodies test. None others related to MG. But am also in the midst of finding a good neuro to go to as my current one is not keen to work on a diagnosis cos he feels it won't help me. I just finished a one hour conversation with my friend and now my mouth feels so tired. Lol. Do any of you get tired from talking??? I never used to feel tired in the mouth from talking.

Wow Connie, what a lot you have been through, and to be able to remain positive is great

Kate

Hey Connie,

I sure hope you get some answers soon, you certainly have been through so much. I too went a very long time without being diagnosed because of one incompetent doctor. Once I was referred to an excellent caring specialist, I was diagnosed and treatment followed. I pray this will happen for you as well. You have a wonderful attitude and sense of humor. I am sure you have touched more lives than you will ever know. Hang in there, we are all pulling for you.

Take care,
Pat

Dear Pat, Thanks so much for your encouragement!! =) This board has helped me a lot too, for its really a place where I can share all my thoughts and yet no one would say I'm crazy. =D

I know what you mean Connie, I love this place too! Take care of yourself and good luck with finding a new neuro. Things will get better soon!

Pat

Just checking in to see how you are today! I know how frustrating all this "hurry up and wait" business is.............and how dr's (especially specialists" have super huge egos..........I tell my docs all the time that it is not about their ego - it is about making me WELL again and if they have a problem with that, then they are the WRONG dr for me......it actually works...they are not used to someone calling them on their "tude" - LOL!

Let us know how are you doing when you have the time/energy!

Big hugs!
Erin

Your story really touched me. Your so brave.

You may have seen my posts where Im diagnosed only to have it taken away.

All I can add is keep the sense of humour as it will see you through the dark times! I had an off the wall sense of humour before its even worse now!

Stay strong and keep fighting. Its really hard, some days you just feel like giving up. On those days call for time on the fight, the next day when you are ready for it get up dust yourself off and start again! If we all keep chipping away at it we will break down this wall that stops Drs saying yep its myasthenia gravis!

I can't offer you anymore than my support,

Take care
Rach

Hi Rach, thanks so much! We're all fighters in our own ways. Have seen so many of you here! Yes, have seen your previous posts, and I do agree the waiting period's tough sometimes. On certain days, my body just refuses to function properly. These days, I usually just take a great movie and watch it in bed. =D

Yes, my sense of humour is becoming quite weird sometimes. Haha.. After all, its great to just smile at everything.