[Pat 110]

Originally Posted by Brennan068

I developed MG in the fall of '07 - symptoms were light and only showed up when I was very tired... they went away after sleep so were attributed to just being tired. By the spring of '08 I had full blown ptsosis on left side, marble mouth and couldn't swallow much of anything. I was diagnosed in April of '08, had my thymectomy in May of '08 and spent until last week recovering from the thymectomy, radiation therapy for the thymoma, pneumonias from the radiation burns and excessive weight loss.

The ptsosis went away immediately with the thymectomy. It was gone before I was out of hospital. The marble mouth was next to go at around 6-7 months or so and the swallowing is gradually getting better over time. I constantly try things that were "impossible" a few months ago to find that they work fine now. Spicy foods still jam up the swallower though... that'll come with time

Last week I started a graduated return to work; half days for a month. I'll be moving up to 6 hour days in 3 weeks and do that for a month and then to full 8 hour days. The 4 hour days are great . Go in for 8, go to the gym at 12 and then home to sit on my deck in the sun with a cool beer.

Brian

Wow, you've come a long way...good for you! You have a great attitude which goes a long way in the recovery process. Being active is something I've slacked on, but I'm starting to walk around the nieghborhood which is a good start. Going back to work may tire you for awhile, so get lots of rest. I have the feeling you're going to be eating that Tia food in the very near future!

Take care,
Pat

[erinhermes]

Stephanie - what a GREAT idea! Look @ go, girl! This is AWESOME!!!!!!!

I am tired of being tired! I have been sleeping 14-16 hours and wake up tired! Granted, I'm sure it has something to do with my 4 teeth that are infected, but I am getting sick of it!

At least I was able to give Mike a bday party! Yay!

He was soooo cute! You should have heard him! What a hubby!

I go back to the hospital on June 1st for my last round of IV IG and my pred is going to be reduced to 20 mgs a day, so hopefully I will start to look like myself again - I've got to lose those "pesky" 40 lbs that I have gained! LOL

I hope everyone is having a good, STRONG day!

Big hugs!
Erin

[Pat 110]

[QUOTE=erinhermes;511830][FONT="Book Antiqua"][SIZE="3"][COLOR="DarkGreen"]Stephanie - what a GREAT idea! Look @ go, girl! This is AWESOME!!!!!!!

I am tired of being tired! I have been sleeping 14-16 hours and wake up tired! Granted, I'm sure it has something to do with my 4 teeth that are infected, but I am getting sick of it!

At least I was able to give Mike a bday party! Yay!

He was soooo cute! You should have heard him! What a hubby!

I go back to the hospital on June 1st for my last round of IV IG and my pred is going to be reduced to 20 mgs a day, so hopefully I will start to look like myself again - I've got to lose those "pesky" 40 lbs that I have gained! LOL
I hope everyone is having a good, STRONG day!

Big hugs!
Erin
Hey Erin,

Glad to hear your last round is coming up and the pred is being reduced. You'll be looking like you old self before you know it! Hang in and feel better soon.

Pat

[redtail]

I'm heading off to my Sisters to babysit dogs for a couple of days, so will be offline for a few days. Will be back at the end of the week.

[erinhermes]

Have a GREAT time at your sister's place! You will be missed!

Big hugs!
Erin

Originally Posted by redtail

I'm heading off to my Sisters to babysit dogs for a couple of days, so will be offline for a few days. Will be back at the end of the week.

[Pat 110]

Originally Posted by redtail

I'm heading off to my Sisters to babysit dogs for a couple of days, so will be offline for a few days. Will be back at the end of the week.

Happy dog sitting Kate! Enjoy your visit...talk with you when you get back

Pat

[erinhermes]

Hi Pat!

Thank you for your kind words! I really appreciate them! Just feeling sorry fo myself today - hate that feeling! Should be doing something "useful" with my time - just don't have the energy!

If I don't feel better by tomorrow, I'm gonna call my neuro and see if I can have my IV IG bumped up to next week! I love that man!

How are you feeling?

Big hugs!
Erin




[QUOTE=Pat 110;511838]

Originally Posted by erinhermes

[FONT="Book Antiqua"][SIZE="3"][COLOR="DarkGreen"]Stephanie - what a GREAT idea! Look @ go, girl! This is AWESOME!!!!!!!

I am tired of being tired! I have been sleeping 14-16 hours and wake up tired! Granted, I'm sure it has something to do with my 4 teeth that are infected, but I am getting sick of it!

At least I was able to give Mike a bday party! Yay!

He was soooo cute! You should have heard him! What a hubby!

I go back to the hospital on June 1st for my last round of IV IG and my pred is going to be reduced to 20 mgs a day, so hopefully I will start to look like myself again - I've got to lose those "pesky" 40 lbs that I have gained! LOL
I hope everyone is having a good, STRONG day!

Big hugs!
Erin
Hey Erin,

Glad to hear your last round is coming up and the pred is being reduced. You'll be looking like you old self before you know it! Hang in and feel better soon.

Pat

[Pat 110]

[QUOTE=erinhermes;511963]Hi Pat!

Thank you for your kind words! I really appreciate them! Just feeling sorry fo myself today - hate that feeling! Should be doing something "useful" with my time - just don't have the energy!

If I don't feel better by tomorrow, I'm gonna call my neuro and see if I can have my IV IG bumped up to next week! I love that man!

How are you feeling?

Big hugs!
Erin




Hey Erin,

I've just logged on so I haven't read any updates yet. I hope you're having a better day today. We all feel sorry for ourselves once in awhile and then it passes. I've had many of those days myself. I'm feeling good today, thanks for asking. My leggs hurt from walking the treadmill for so long at the cardiologists yesterday, but not too bad. I can't blame it on the MG, I'm just really out of shape...then again maybe I wouldn't be so out of shape it wasn't for the MG! hahaha Take care.

Hugs to you too!
Pat