[cricket001]

Really, my tongue feels like it has gotten fatter...and the inside of my mouth/ cheeks have changed --either fatter or more relaxed feeling...and I am always sooo worried about my breath....When all of this started, I was so worried about oral cancer or throat cancer.....but my dentist said that my gums, tongue, everything looks healthy. Thyroid is healthy and normal too...thyroid uptake did show mild hyperthyroidism...but nothing major..

I didn't realize that this could all be related to occular MG..

Originally Posted by ras1256

Wow, I hope I don't forget some of what I wanted to post. There's so much here.

Erin, I'm glad you're feeling better! But, you did what you're supposed to be careful of. Just because you feel good finally, you really need to watch how much you do! That sounded like an awful lot, considering how you've been feeling. Please be careful - I really want to see you get past the point of having these really bad days! Ok - enough "mommy talk".

re: treadmills - I had one done before I was dx'd with MG and my O2 dropped like a rock, so I got sent right off to a lung specialist. After much toodoo, it was discovered that I had been gripping the handrail so hard I had cut off the blood flow to the finger that the O2 sensor was on! (HA HA). My legs couldn't handle the test, so I was hanging on for dear life with my arms - At least I now my lungs are in great shape!

Lizzie - I'm so sorry! If I could take some of your problems on myself for you I would! I wish there was something more I could do, besides let you know I'm thinking of you and pulling for you to get through all this with the least trouble possible. I'm worried you're being put through too much at one time for your conditions!

There goes my brain, but I think it was Connie that posted about the joints locking up. Joint pain isn't typically part of MG. There are lots of things - RA, Lupus, my viral condition, to name a few, that can cause jt pain, severe fatigue, weakness. I hope they get through the testing on you soon!

Alice, the marble mouth is part of the "occular" MG symptoms. Basically, it seems, when they say occular, they are talking about all things above the neck. Generalized includes the above and below the neck, so hits the legs and arms as well. Either can show symptoms in both places in seems, but the dx is based on those muscles most affected from what I have noticed. Sorry to have to tell you that. Thanks for the info on the urgent care. I hope the one you're referring to isn't the one close to where I work at I25 and 58th ave. Let me know, ok?

I have returned to work! I'm doing soooo much better now that I have the anti virals! It's amazing how fast I went to being able to walk normally, lost the pain in my back, the night sweats, gained stamina and a good deal of energy! To go from where I was, with my husband scared to death I was dying a slow death, to this is phenomenal. I wish everyone could do this - it's akin to Erin's high after the IVIG. I still have to take it easy until the immune system calms down, and am needing Mestinon in the afternoons sometimes, but WOW - what a difference this has made!

I'm going to post some more specific information about what this virus thing does. I've seen some posts here that really make me wonder if others are experiencing this, and 14 years of docs never thought to check it on me, so.....

Love to you all - hope you all have strong days today. I don't have the opportunity to check in every day as I'm trying to get as many hours in at the office as I safely can, but I'll be back!