[Brennan068]

Three weeks down of 4 hour days at work, one more week to go then I get to "stretch" to 6 hour days. I must say working 1/2 time and getting full time pay is sweeeet.

The gym has continued to be great for me, my physio has upped the stakes adding in a bunch of new exercises to mix it up and push me a little more. I have also gone back to my old Tai Chi instructor to start that up again. I did it for 5 years then stopped for 4.... it is enjoyable to be able to get back to it. Tai Chi is great exercise if you don't have generalized MG but I would not recommend it for those who do; there is a lot of putting your weight on one bent leg and holding position for extended periods of time.

Increased muscle mass and tone has allowed me to put on some of the weight I have lost; I'm still mostly fat free though. Up to 125lbs now (heh, "up to..." before MG I was desperate to get "down to").

My MG is well controlled and feels like I may be close to remission. Eating is much better, but there continue to be some problem foods. It is funny, Crab, Lobster and shrimp - before MG I never noticed the difference in consistency and actually thought they were quite similar. Crab slides down without effort, Shrimp I cannot eat much of before it tires my swallower out and Lobster is about half way between. They all remain yummy and worth the effort though.

As far as meds go: I'm sticking with my 90mg 3x a day Mestinon for now, I'll discuss with my neuro at our next meeting (probably July or August) to see what he thinks of my reducing it back down to 60.

2009 is way more better than 08 for me; at least so far.

[erinhermes]

What AMAZING news! That is soooooo flippin awesome!

I know I sound stupid, but what type of MG do you have? I have the generalized MG.......

My goal is to work 6 hr days after the IV IG. I miss being around people so much! LOL!

I bet you are GOING into remission right now! It certainly sounds like it *happy dance*!!!!

09 is going to be our YEAR! Amen!

Big, big hugs!
Erin

Originally Posted by Brennan068

Three weeks down of 4 hour days at work, one more week to go then I get to "stretch" to 6 hour days. I must say working 1/2 time and getting full time pay is sweeeet.

The gym has continued to be great for me, my physio has upped the stakes adding in a bunch of new exercises to mix it up and push me a little more. I have also gone back to my old Tai Chi instructor to start that up again. I did it for 5 years then stopped for 4.... it is enjoyable to be able to get back to it. Tai Chi is great exercise if you don't have generalized MG but I would not recommend it for those who do; there is a lot of putting your weight on one bent leg and holding position for extended periods of time.

Increased muscle mass and tone has allowed me to put on some of the weight I have lost; I'm still mostly fat free though. Up to 125lbs now (heh, "up to..." before MG I was desperate to get "down to").

My MG is well controlled and feels like I may be close to remission. Eating is much better, but there continue to be some problem foods. It is funny, Crab, Lobster and shrimp - before MG I never noticed the difference in consistency and actually thought they were quite similar. Crab slides down without effort, Shrimp I cannot eat much of before it tires my swallower out and Lobster is about half way between. They all remain yummy and worth the effort though.

As far as meds go: I'm sticking with my 90mg 3x a day Mestinon for now, I'll discuss with my neuro at our next meeting (probably July or August) to see what he thinks of my reducing it back down to 60.

2009 is way more better than 08 for me; at least so far.

[Brennan068]

Mine is technically generalized, but never *really* effected limbs all that badly. The worst thing that happened to my limbs was the muscle loss due to not being able to eat. I was only seriously effected on the left side of my face and neck muscles. My arms and legs are effected but not noticeably to me - my neuro can tell when doing tests though.

Originally Posted by erinhermes

What AMAZING news! That is soooooo flippin awesome!

I know I sound stupid, but what type of MG do you have? I have the generalized MG.......

My goal is to work 6 hr days after the IV IG. I miss being around people so much! LOL!

I bet you are GOING into remission right now! It certainly sounds like it *happy dance*!!!!

09 is going to be our YEAR! Amen!

Big, big hugs!
Erin

[ConnieS]

Hi all of you! Its been a bout a week since i last logged in to check this thread and gosh... 12 pages. lol... great that everyone's checking in here!

Just a quick update, i'm now in a hospital undergoing some tests, been here about a week already and having all sorts of medicine "dripped into" me. Did a emg on mon and gosh. it hurt so badly, hate the part about them digging in my flesh. Survived that test after a gruelling 1 hr odd, and am having the tensilon test later. Was told by docs today that my emg showed some abnormalities, though they didn't specify, and they mentioned that they'll have to do some more tests to be certain about my diagnosis. Its weird though, my emg in Mar showed normal results.

Am okay here, I tried walking around the day before and yesterday, and after 5 mins of walking, i slept for 3 hours. Haha! Symptoms wise, my neck's getting weaker, muscles keep twitching, and chest feels heavy.

But I'm glad the doctors here are taking my symptoms seriously, and are doing all they can to find out whats wrong with me. Am having an allergic reaction to one of the meds they gave me, so i look like a tomato now! I am also put on hormone pills and a whole lot of other pills and bags of drips for the time being.

may be having a muscle biopsy soon, anything i should take note of for that? it sounds scary.. lol.

really miss u guys. do take care alright? Have a great week everyone! will try to login when i can.

[TxSimon]

Originally Posted by ConnieS

Hi all of you! Its been a bout a week since i last logged in to check this thread and gosh... 12 pages. lol... great that everyone's checking in here!

Just a quick update, i'm now in a hospital undergoing some tests, been here about a week already and having all sorts of medicine "dripped into" me. Did a emg on mon and gosh. it hurt so badly, hate the part about them digging in my flesh. Survived that test after a gruelling 1 hr odd, and am having the tensilon test later. Was told by docs today that my emg showed some abnormalities, though they didn't specify, and they mentioned that they'll have to do some more tests to be certain about my diagnosis. Its weird though, my emg in Mar showed normal results.

Am okay here, I tried walking around the day before and yesterday, and after 5 mins of walking, i slept for 3 hours. Haha! Symptoms wise, my neck's getting weaker, muscles keep twitching, and chest feels heavy.

But I'm glad the doctors here are taking my symptoms seriously, and are doing all they can to find out whats wrong with me. Am having an allergic reaction to one of the meds they gave me, so i look like a tomato now! I am also put on steroids and a whole lot of other pills and bags of drips for the time being.

may be having a muscle biopsy soon, anything i should take note of for that? it sounds scary.. lol.

really miss u guys. do take care alright? Have a great week everyone! will try to login when i can.

Connie,
Keep the faith and know that we are thinking of you! Glad you have doctors who are being serious about your conditions. Just know that we are here for you. Keep us posted.
Simon

[erinhermes]

Hey hon! I am so very happy for you! I know it is awful being in the hosp, but at least they are finally listening to you! AMEN!!!!!!!!

The EMG is rather painful. I told my neuro that - he knows my fear of needles and never mentions that part until I hear him pulling on the gloves - blood everywhere - yuck! I don't mind the other part - the electic stuff going through me, but the needle still freaks me out!

Do the drs have any idea what you are allergic to? Are you feeling better @ all with the meds? How long do they plan on keeping you there?

We have missed you!!!!!
Big hugs!
Erin

Originally Posted by ConnieS

Hi all of you! Its been a bout a week since i last logged in to check this thread and gosh... 12 pages. lol... great that everyone's checking in here!

Just a quick update, i'm now in a hospital undergoing some tests, been here about a week already and having all sorts of medicine "dripped into" me. Did a emg on mon and gosh. it hurt so badly, hate the part about them digging in my flesh. Survived that test after a gruelling 1 hr odd, and am having the tensilon test later. Was told by docs today that my emg showed some abnormalities, though they didn't specify, and they mentioned that they'll have to do some more tests to be certain about my diagnosis. Its weird though, my emg in Mar showed normal results.

Am okay here, I tried walking around the day before and yesterday, and after 5 mins of walking, i slept for 3 hours. Haha! Symptoms wise, my neck's getting weaker, muscles keep twitching, and chest feels heavy.

But I'm glad the doctors here are taking my symptoms seriously, and are doing all they can to find out whats wrong with me. Am having an allergic reaction to one of the meds they gave me, so i look like a tomato now! I am also put on hormone pills and a whole lot of other pills and bags of drips for the time being.

may be having a muscle biopsy soon, anything i should take note of for that? it sounds scary.. lol.

really miss u guys. do take care alright? Have a great week everyone! will try to login when i can.