[Scots Kat]

Hey everyone!
Just thought I'd pop in to say hi! I'm on vacation in Canada (home from Scotland for the summer - visiting parents etc). I've been checking in occasionally to see how you are all doing. I've been pretty good since being home, had one really bad day soon after I arrived (figure it must have been jetlag). The day was so bad I had to break out my cane! My poor mom was beside herself! She didn't know what to think.

My uncle (who is 62) got married for the first time last weekend - such a romantic story. I read at the wedding which was great, since a year ago I wouldn't have been able to walk up to the altar and read in front of everyone. I'm still quite swollen from my pred, but looking more "normal" compared to last year.

Hope you are all enjoying the summer! Take care!
~Kathy

[ConnieS]

Its great to see all of you checking in!! Missed hearing from so many of you.

I've been trying to walk around more, still insisting on walking by myself. HAve gotten used to my fascics so they're no longer bothering me that much. Amazing how my body jumps alot nowadays. Lol. am still doing my best to keep my weight up, am thankful it has not dropped recently. Having a hard time sleeping, get breathless ev now and then, so sleeping on two pillows. Lol. I feel like a giraffe, raising my neck/head so high. Wake up in the morning aching, think its due to the weird raised position. But at least I get to sleep. The weather here has been great, but really hot!!

Pat: You deserve it! You're such a sweet person. Am glad you have enough energy to go about doing some chores. Rem to take it easy! Thoughts are things, and good thoughts will translate into good things!!

Simon: Yeah! WAs wondering what you've been up to. I've heard stories bout how HOT Texas can get, hope you get to stay cool and chase away those side effects!

Kate: You lucky girl. Am so glad you've a great sister looking out for you, and that you got to go out with your family! Its always nice to have family support.

Kathy: You've checked in!Great to hear from you. I'm also swollen from my meds, so I understand what you're feeling. Glad that you're home, and on vacation! Rem to enjoy yourself! It must be really sweet reading at your uncle's wedding. Happy that things are better for you!

[Pat 110]

Hi Connie,

I am glad to hear you are still able to get around on your own and found a way to get a good nights sleep.

I am still feeling pretty good just don't have much energy. I Pulled a muscle in my back just by lifting a couple of small laundry baskets yesterday. Wish I could say they were heavy, but they weren't. LOL It will feel better by tomorrow, so I won't do too much today. Maybe I'll bake some brownies...my husband's been hinting for them. It has been hot & humid (not as bad as Texas) here and today we are getting strong thunder storms.

Thank you again, but I'm only doing what everyone else here does including yourself. I hope you have a good day! Take care.

Hugs,
Pat

[motorhead]

i'm new. on mestinon and prednisone. almost up to the max. dosage of pred. have been adding 5mg every 5 days to a max of 60mg. i've been told this will continue for some time. i'm tolerating both well. there are side effects but i deal with them. the mg is far more debilitating than the drugs and before treatment my condition seemed to be worsening.

[neutro]

Hi motorhead, welcome to this forum!
Since you are to take high dose of Pred for quite some time, you should take some precautions against osteoporosis (high calcium and vitamin D diet), potassium depletion (eat bananas, nuts, green vegetables…), eat low fat- low sodium-low sugar food and as far as glaucoma and cataract are concerned, see your ophtalmologist regularly…
Maurice.

[motorhead]

well cataracts won't be a prob. had both lenses replaced with implants last year. am on heavy vitamin regimen along with the rest of the pill smorgasboard.

[Pat 110]

Hello Everyone,

I haven't been on for almost a week. Wasn't feeling well. I can't believe all the posts! I am going to do my best to try and get caught up. I sure missed all of you, but you were all in my thoughts.

Welcome to all the members! As I'm sure you aready know, this is a wonderful and supportive forum. The people here are the best and I consider them my friends. We are like one big family. Always willing to help in any way they can.

Hope everyone is having a good day! Take care and stay cool.

Hugs,
Pat