I got IVIG for four days while in the ICU. I had no adverse reaction. In fact, I began to show steady improvement as soon as it was started. However, about three weeks later the effects had worn off and I needed it again. This time I got it outpatient at the infusion center. The first day it took 12 hours! They did a real slow drip to make sure that I had no adverse reaction. The next three days it took about 6 hours each. But I feel soooo much better now. I hope the benefits hold this time. I'm curious if any of you have trouble getting your insurance company to pay for IVIG outpatient. I'm told it costs $20,000. per dose - 4 days worth.

Glad to hear you are feeling better! That stuff is amazing! Love it!

I have heard that some people are able to get it done @ home - can you imagine? Being able to relax in the comfort of your own home while having that done?!? Sadly I am not one of those people, but maybe you will be allowed!

I haven't had any problems so far with the insurance company - I believe they feel it is cheaper to keep me out of ICU!

Big hugs!
Erin

I get mine at home, they set it up through home care nursing. My neuro doesn't want me near any hospitals if he can help it, due to all the sickness there. So I get everything at home !
Mary

How on earth did you manage that? I would love to have mine @ home but my dr refuses to let me.........

Did you talk your neuro into it or was it his/her idea?

I've got to get that - I am sooooo jealous!

Erin