Originally Posted by rach73

Hi all,

I just thought I would give you an update on whats happening.

Mood wise Im very up and down. This has been due to the fact that my very caring neurologist isnt seeing me until the end of August. I also had a call from my gp's surgery to say that he wanted me to go in and see him, they demanded I made an appointment there and then. I told them I couldn't as I needed to know my husbands schedule, as I couldn't get to the surgery alone. This was scoffed at. Silly me obviously as the Drs secretary you have a degree in medicine, I apologise for my ignorance!

My GP is basically going to sit there and crow because since the disasterous visit to Oxford he believes that alot of my illness is phsycological. Thank you Oxford.

Today I have managed to down load the video onto my pc and then onto a disc and I will be sending it to the Weatherall Institute of Molecular Medicine, where Angela Vincent does her research.

Im asking for some advice here, I know I need to remain neutral in my covering letter. Should I give her a history of my symptoms ? Should I include my neurologists name and address along with my GP's? What do you all think?

Also does anyone else suffer with extreme self doubt when it comes to their illness? As you know I did the heel walking test last night, then today I question its results by telling myself I knew what the outcome would be so I put it on. I know this is crazy talk, but I dont believe myself sometimes....does anyone else have this?

Im taking the mestinon when my eye is closed and it opens after an hour. Im also taking it when I have bad muscle weakness. I have to take propantheline with it as I suffer really badly with side effects, horrific stomach aches which remind me of when I had bowel adhesions. I also get the runs, sorry I can't spell the D word!

I look forward to your responses and Im looking forward to a brighter future.


Rach