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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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05-30-2009, 09:14 AM
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Good Morning,
Feeling a little sick today, but wanted to say thank you all. Pat, CycloSporine is an old trusted MG med, that's been used for many years. I can't use the Cell-cept, which, was wondering for my MG, but it started to shut down my kidneys. I cried when I had to go off that one. Imuran was horrible on me, sicker than sick with it, and got so violently ill, that my cardio believes it caused me a very mild heart attack. So, they tried the ole' stand by CycloSporine Oh Annie, you sure said a Mouth full of the two of us seeing our share of the bad doctors before we found the good ones. It's why, I tell people, not to give up on doctors, keep searching. Although, I never had any problems really with an MG doctor, but I had some awful other ones, like one Orthopedic doctor, that should have Never had gone into the medical field. I'm so glad you found some good ones, you deserve it, you've gone through the mill, to say the least. Christmas...thank you,and this is why, I wanted to take a moment to say something good about doctors. There really are good ones out there, who really do care. The bad ones cause so much damage to us emotionally, it's hard to trust again afterwards. Erin, The kidney biopsy wasn't bad at all. I was mostly out of it during it. And the doctor who did it, was very sensitive to my being comfortable, which helped a great deal. I find, being sedated during those kinds of precedures, are very much welcomed...lol...funny how that is...  For the muscle biopsy, did they give you anything? I told them, if they needed to put me under even further, they could even use one of those rubber mallets that are used for reflexes.  Love Lizzie I'm going to go rest today, I'm still pretty tired, and feeling sick today. Love you all. |
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