I was just informed by my pharmacist that the "toxic to the wallet" cellcept is now on the generic list...had a very bad day on Mon..for some unknown reason, just felt very weak & ill.......maybe now I can try that added to my Mestinon when I feel that way.....

Dottie

Dottie,
The news is good on the generic Cellcept. I got the same news this week from my insurance company. I know they are glad! I take Mestinon and Cellcept and they seem to work fairly well for me. The Cellcept works better on me than Imuran. Hope you get to feeling better. Keep us posted.
Simon

Hi korbi doc,
About Cellcept, do you know that it could take a year (or more!) to be effective…?
All immonosuppressors are amongst the slowest medications for MG…
Maurice.

Wow! Generic Cellcept?!? Wish I was able to take it - when I did, I went down to 15 mgs of pred but had another crisis, so I was switched to Imuran. Hopefully that will work better!

Hope you feel better soon!
Big hugs!
Erin

Simon, glad to hear that the Cellcept works for you....I bet the insurance co is glad too, lol!!

Maurice, I did not know that!! A year??? WOW!! Guess I'll just have to keep on with the Mestinon & try to control the side effects....but I'll talk to my neuro 'bout it next visit....

Gosh Erin, those crises are so hard to take...I've been lucky so far that I didn't end up in hospital...just thought I was dying from heart failure after an endo guy told me that...wasn't true, thank goodness....hope you're feeling better....

Dottie

Hi Dottie,

Sorry to hear you had a bad day. I've been having a few myself, but I'm feeling better. Hope you are having a good day today! Take care.

Hugs,
Pat

I just went to the doctor today and I needed my cellcept prescription renewed. I told her about the generic being out and she did not want me to use the generic form. She said the FDA doesn't regulate the potency of it. Well, now that the generic is out my insurance will only pay half and ninety percent of the generic. That comes to 50 dollars compared to 400 dollars. What's the deal? Is cellcept putting some kind of pressure on doctors to do that since the generic is out and they will probably lose millions. I don't appreciate the scare tactics just to make a buck. Needless to say, I'm going with generic, even though my doctor is not happy about it. Too Bad. I'm just not buying that story. Has anyone heard that?

I think it is a bunch of bull about generics not being as good as brand.

I just started CellCept last week. My neuro didn't want me using generic either. Luckily my insurance is $10 per month for generic and $20 for name brand. My slip said it would have cost me $472.

Hello all! My neuro is about the most cautious man alive and even HE approved my new generic Cellcept! Why on earth would they make one if we cannot take it?

Go figure......

Erin