Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

Reply
 
Thread Tools Display Modes
Old 06-15-2009, 12:30 PM #1
Pat 110 Pat 110 is offline
Member
 
Join Date: May 2009
Posts: 586
15 yr Member
Pat 110 Pat 110 is offline
Member
 
Join Date: May 2009
Posts: 586
15 yr Member
Default

I've had the face freeze countless times. Lasting several minutes to a couple of hours. When the right side of my face drooped, it took 6 months to go back to almost normal again. To this day I still don't have my full smile back and my right eye, which was my worst one, still has a slight droop to it that the Dr. says is permanant. Compared to what I did look like when all this was happening, I am very happy and grateful to look this normal again!
Hugs,
Pat
Pat 110 is offline   Reply With QuoteReply With Quote
Old 06-15-2009, 01:08 PM #2
Scots Kat Scots Kat is offline
Member
 
Join Date: Feb 2008
Posts: 175
15 yr Member
Scots Kat Scots Kat is offline
Member
 
Join Date: Feb 2008
Posts: 175
15 yr Member
Default

Hi guys,
I too have had "frozen face" on occasion. Mine always only lasted for a few minutes (thankfully). It used to happen regularly when I was teaching and talking a lot (as I regularly do). I used to make a fish face (suck in my cheeks and chew them a bit to get feeling back) so often that my kids started making the same face back to me. It was pretty cute actually. I'm lucky that I never had any noticible drooping other than in my eyes.

Hope you have a great day!
~Kathy
Scots Kat is offline   Reply With QuoteReply With Quote
Old 06-15-2009, 01:46 PM #3
rach73 rach73 is offline
Member
 
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
rach73 rach73 is offline
Member
 
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
Default

Thanks guys ! You are so supportive here I never feel like a numpty when I ask a weird question!
rach73 is offline   Reply With QuoteReply With Quote
Old 06-15-2009, 04:29 PM #4
Nicknerd's Avatar
Nicknerd Nicknerd is offline
Member
 
Join Date: May 2009
Location: Toronto, Canada
Posts: 547
15 yr Member
Nicknerd Nicknerd is offline
Member
Nicknerd's Avatar
 
Join Date: May 2009
Location: Toronto, Canada
Posts: 547
15 yr Member
Default

Hey Rach,

I also have the frozen face. On my last day of work, before I asked for time off because I could barely be understood, I was talking like the God father, marble mouth and unable to move my face. It was really weird!

It definately got worse the last couple of months. One time, I couldn't move anything for about 30-minutes. I couldn't even close my eyes. This also happens often if I experience a strong emotion, like laughter...lol...Imagine making a funny quip, and the person hearing you suddenly looks like, at first, you've just punched them, and right after, they've just had an injection of botox! lol...Anything extremely funny to me causes me to appear as if my face is melting...lol...I don't mean to make light, but it's good to know that it DOES get better, as so many others have said....That's the brightside to this--As hard as it is at first, there IS treatment....Thank God.
Nicknerd is offline   Reply With QuoteReply With Quote
Old 06-15-2009, 11:01 PM #5
redtail's Avatar
redtail redtail is offline
Member
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
redtail redtail is offline
Member
redtail's Avatar
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
Default

I remember just before I was diagnosed, I had just finished clipping a dog, and was talking to its owner. All of a sudden the right side of my body stopped working, but more noticably my face. All I could think of was, aaahhhh I'm having a stroke (Dad had had one about 2 weeks earlier) I was terrified, but can now look back and realise what was going on.

Now I know I'm having a bad phase if my fingers don't want to type/write chop food etc, and I know its time to sit and relax for a while.
__________________


Outside of a dog, a book is a man's best friend.
Inside of a dog, it's too dark to read.
Groucho Marx
redtail is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
rach73 (06-16-2009)
Old 06-16-2009, 10:08 AM #6
rach73 rach73 is offline
Member
 
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
rach73 rach73 is offline
Member
 
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
Default

Hiya,

Just to let you know its doing it again right now! Its very hot and I have basically been very stupid and done whey too much........

Did the cleaning...make legs shook throughout had a couple of hours rest and then walked the dogs. Sat here now with the clown face! But I wont be calling for anyone as its pointless. Im just hoping it eases up soon as Im starving!!! Oh well I suppose I could melt some ice cream!

Love Rach x
rach73 is offline   Reply With QuoteReply With Quote
Old 06-16-2009, 01:55 PM #7
erinhermes's Avatar
erinhermes erinhermes is offline
Senior Member
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Help Hi Rach!

Hey sweetie! I KNOW I am a HUGE hypocrite, but you have got to take it ez - not ez - I know - I KNOW, but I am worried you are going to have a crisis and end up in the hosp - and you know firsthand how much they stink!

As for the clown face thing, and only being able to eat melted ice cream - I know exactly what you mean - truly! I was terrified, b/c I had no idea what was going on...none.......have you tried Ensure? Just the SMELL of it makes me sick to me stomach now b/c that was all I could choke down (literally) towards the end, but it is really good for you! Why is it that that stuff that is good for you taste AWFUL? Seriously!?!

I hope you are feeling better now!

Big hugs!
Erin








Quote:
Originally Posted by rach73 View Post
Hiya,

Just to let you know its doing it again right now! Its very hot and I have basically been very stupid and done whey too much........

Did the cleaning...make legs shook throughout had a couple of hours rest and then walked the dogs. Sat here now with the clown face! But I wont be calling for anyone as its pointless. Im just hoping it eases up soon as Im starving!!! Oh well I suppose I could melt some ice cream!

Love Rach x
__________________
Erin
.
erinhermes is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Gait Freezing Fowki Parkinson's Disease 1 04-27-2009 04:27 PM
? about freezing mushrooms Lara Food Court 3 01-27-2009 06:46 PM
Freezing to death Silverlady Peripheral Neuropathy 28 09-16-2006 03:17 PM


All times are GMT -5. The time now is 02:40 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.