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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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I've had the face freeze countless times. Lasting several minutes to a couple of hours. When the right side of my face drooped, it took 6 months to go back to almost normal again. To this day I still don't have my full smile back and my right eye, which was my worst one, still has a slight droop to it that the Dr. says is permanant. Compared to what I did look like when all this was happening, I am very happy and grateful to look this normal again!
Hugs, Pat |
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#2 | ||
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Hi guys,
I too have had "frozen face" on occasion. Mine always only lasted for a few minutes (thankfully). It used to happen regularly when I was teaching and talking a lot (as I regularly do). I used to make a fish face (suck in my cheeks and chew them a bit to get feeling back) so often that my kids started making the same face back to me. It was pretty cute actually. I'm lucky that I never had any noticible drooping other than in my eyes. Hope you have a great day! ~Kathy |
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#3 | ||
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Thanks guys ! You are so supportive here I never feel like a numpty when I ask a weird question!
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#4 | |||
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Hey Rach,
I also have the frozen face. On my last day of work, before I asked for time off because I could barely be understood, I was talking like the God father, marble mouth and unable to move my face. It was really weird! It definately got worse the last couple of months. One time, I couldn't move anything for about 30-minutes. I couldn't even close my eyes. This also happens often if I experience a strong emotion, like laughter...lol...Imagine making a funny quip, and the person hearing you suddenly looks like, at first, you've just punched them, and right after, they've just had an injection of botox! lol...Anything extremely funny to me causes me to appear as if my face is melting...lol...I don't mean to make light, but it's good to know that it DOES get better, as so many others have said....That's the brightside to this--As hard as it is at first, there IS treatment....Thank God. |
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#5 | |||
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I remember just before I was diagnosed, I had just finished clipping a dog, and was talking to its owner. All of a sudden the right side of my body stopped working, but more noticably my face. All I could think of was, aaahhhh I'm having a stroke (Dad had had one about 2 weeks earlier) I was terrified, but can now look back and realise what was going on.
Now I know I'm having a bad phase if my fingers don't want to type/write chop food etc, and I know its time to sit and relax for a while.
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Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx |
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"Thanks for this!" says: | rach73 (06-16-2009) |
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#6 | ||
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Hiya,
Just to let you know its doing it again right now! Its very hot and I have basically been very stupid and done whey too much........ Did the cleaning...make legs shook throughout had a couple of hours rest and then walked the dogs. Sat here now with the clown face! But I wont be calling for anyone as its pointless. Im just hoping it eases up soon as Im starving!!! Oh well I suppose I could melt some ice cream! Love Rach x ![]() ![]() |
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#7 | |||
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Senior Member
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Hey sweetie! I KNOW I am a HUGE hypocrite, but you have got to take it ez - not ez - I know - I KNOW, but I am worried you are going to have a crisis and end up in the hosp
![]() ![]() As for the clown face thing, and only being able to eat melted ice cream - I know exactly what you mean - truly! I was terrified, b/c I had no idea what was going on...none.......have you tried Ensure? Just the SMELL of it makes me sick to me stomach now b/c that was all I could choke down (literally) towards the end, but it is really good for you! Why is it that that stuff that is good for you taste AWFUL? Seriously!?! ![]() I hope you are feeling better now! Big hugs! Erin ![]() Quote:
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Erin . |
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