Hi,

I know exactly how you feel. At the hospital they tried to get me to take on a care package, someone to come in and help me wash and dress, do the cleaning etc. I said no as if you take these things away from me I have nothing. What am I supposed to do then sit and watch Jerry Springer / Maury all day I'd go Fu***ng nuts (you fill in the blanks).

Im crappy today as I helped my husband clean the car, or shall I say I supervised. I did a little bit of dusting, my neighbours must think Im a bossy cow! Plus he wouldn't let me play with the hose, men are so selfish!

I wasn't really up to doing that yesterday, but I had to do something. The mind is willing but the body says no!

Sorry Im moaning but Im fed up! Im also really suffering with the side effects of mestinon. My stomach feels like there is a knife ripping through it.

I think a lot of us just keep going until we collapse and then you have these really helpful people that say pace yourself. Grrrrrrrr! Ok Im finished.

Have a great day!

Rach