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Old 06-21-2009, 08:46 AM #1
AD404 AD404 is offline
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Help so many question
should all MG patiences be on so dosage of predisone?
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Old 06-21-2009, 11:17 AM #2
Joanmarie63 Joanmarie63 is offline
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How much do you take?
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Old 06-21-2009, 11:50 AM #3
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Smile Hi AD404!
First of, let me say Welcome to neurotalk! It is a GREAT site to meet other's with MG - and let me tell you, it is the greatest bunch of people I have ever come across!

Now, as for your question about Pred. It really depend on the person. There are people who get along fine with just Mestinon, and others (like me) who NEED pred in order to live a "normal" life...........I am so thankful for the pred - it has truly worked wonders for me - hate the side effects!

Now, if you have the time, please let us know a little about yourself! When were you dx'ed, what your symptoms were, etc......

Take care!
Erin










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should all MG patiences be on so dosage of predisone?
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Old 06-22-2009, 10:31 AM #4
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Not all of us take pred...my neuro-doc is dead set against prednisone cuz of the problems associated, side effects.....He would however, add Cellcept to the Mestinon when nec..good luck...

Dottie ...
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Old 06-22-2009, 11:15 AM #5
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Hi,

I haven't taken pred by choice, but I had a thymectomy and take mestinon. How are you doing and what meds do you take? Take care.

Pat
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Old 06-22-2009, 09:58 PM #6
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Hi AD 404
I fluctuate between 10 & 40 mg, I try to stay as low as possible, I can't seem to get below the 10 mark. I run into trouble with my eyes, Muscle weakness, fatigue. Love hate relationship ! LOL.....
Nice to meet you !
Mary
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Old 06-23-2009, 01:37 PM #7
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I have only been on Prednisone 2 times. I took it for one week before my thymectomy to help control the symptoms. Then about 3 months after that my eye got really drooped and I took it again for one week. I only took 8mg a day for one week each time I had it prescribed.
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Old 06-24-2009, 09:49 AM #8
AD404 AD404 is offline
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Smile Thank you
Quote:
Originally Posted by erinhermes View Post
First of, let me say Welcome to neurotalk! It is a GREAT site to meet other's with MG - and let me tell you, it is the greatest bunch of people I have ever come across!

Now, as for your question about Pred. It really depend on the person. There are people who get along fine with just Mestinon, and others (like me) who NEED pred in order to live a "normal" life...........I am so thankful for the pred - it has truly worked wonders for me - hate the side effects!

Now, if you have the time, please let us know a little about yourself! When were you dx'ed, what your symptoms were, etc......

Take care!
Erin



it is my sister who has the MG I know that she is on Mestinon and goes for treatments . Right now she is battling with insurance company . I really want her to join your group of wonderful people. God bless you all . I think you are all amazing people
it is my sister who has the MG I know that she is on Mestinon and goes for treatments . Right now she is battling with insurance company . I really want her to join your group of wonderful people. God bless you all . I think you are all amazing people
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Old 06-24-2009, 05:43 PM #9
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Smile Hi AD404!
Hello again! You are truly wonderful sibling to be so involved with your sis! I hope she decides to join this site!

Big hugs!
Erin









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it is my sister who has the MG I know that she is on Mestinon and goes for treatments . Right now she is battling with insurance company . I really want her to join your group of wonderful people. God bless you all . I think you are all amazing people
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Old 06-25-2009, 08:07 AM #10
Joanmarie63 Joanmarie63 is offline
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I agree with Erin and hope she decides to join us but remember as a family member this is a great site for YOU as well, here you will learn what your sister is feeling and how to help her cope as well as a place for you to learn and understand your own feelings.
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