NeuroTalk Support Groups - Anyone heard of this one?

Page 2 of 2

Show 40 post(s) from this thread on one page

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)

- - Anyone heard of this one? (https://www.neurotalk.org/myasthenia-gravis/91006-heard.html)

erinhermes

06-26-2009 02:58 PM

Hi Tbarney!

Hi Tbarney!I've been on Imuran for about 5 months now - don't understand why I'm having a reaction now! My blood work was fine, so I'm no longer scared about that!:D

Cellcept was great! The only thing I didn't like about it was how much it costs! I was even actually able to go down to 15 mgs of pred while I was on it!

How are you feeling today? Are you feeling better?

Big hugs!
Erin:hug::hug::hug:

Quote:

Originally Posted by Tbarney (Post 529165)

I still am trying to decide which to take Imuran or Cellcept. Erin how long had you been on Imuran?

xmas 25

06-27-2009 06:42 PM

###**##** how much can you take? i hope you just stuff yourself with sonme gooey ice cream and fresh bread with butter.[those are my comfort foods]

momma3love

06-27-2009 07:12 PM

Awwww Erin.....I am sorry you are having so many difficulties. Once you start becoming allergic to meds it seems to keep happening. So be careful now. I really hope you feel better soon. Allergic reactions seem to take a lot outta me. Take care and better luck with the Cellcept right? I will keep my fingers crossed for ya.

sabimax

06-27-2009 07:40 PM

my dad, is peeling hands....we assumed from his chemo he was taking back when ... but dr also said, poor nutrition can cause this too... good luck and hugss,sarah

jccgf

06-27-2009 09:28 PM

Is there any chance you could have been exposed to strep, and missed it?

http://www.google.com/search?hl=en&r...n&aq=f&oq=&aqi=

erinhermes

06-28-2009 02:29 PM

Hi xmas~

Hey hon!:D how are YOU doing today? I have been eating my comfort food = chocolate and lots of it! I know it will get better soon!

Big hugs!
Erin:hug::hug::hug:

Quote:

Originally Posted by xmas 25 (Post 529791)

###**##** how much can you take? i hope you just stuff yourself with sonme gooey ice cream and fresh bread with butter.[those are my comfort foods]

erinhermes

06-28-2009 02:31 PM

Hi there!

Hello and welcome! What wonderful advice! I'm going to see my neuro next week for another follow up - I'll ask him to give me the test!

Thank you!
Erin:D

Quote:

Originally Posted by jccglutenfree (Post 529848)

Is there any chance you could have been exposed to strep, and missed it?

http://www.google.com/search?hl=en&r...n&aq=f&oq=&aqi=

justdeb

06-28-2009 07:57 PM

Reaction

Erin, what you describe is more likely a reaction to the IVIG than anything else. IT is a common reaction to it. Do read up and see what ya think. PRaying you get betta soon.

All times are GMT -5. The time now is 07:27 AM.

Page 2 of 2

Show 40 post(s) from this thread on one page