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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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06-25-2009, 06:53 PM | #1 | |||
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Hello all! Just got back from the hospital where they did my labs........my hands and feet are peeling really badly and have had NO energy for the last couple of days....long story short -my neuro thinks I'm sufferig from an allergic reaction to my IMURAN!
WTH? So, I have to go to the hospital IMMEDIATELY for a STAT blood draw and am waiting for the results............... Came home to a hurt animal and a rude 17 yr old.....could just SCREAM! The only positive out of today is that I may start Cellcept again - I've kept all of my old cellcept from b/4 Hopefully you are all happy and STRONG! Big hugs! Erin
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Erin . |
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06-25-2009, 07:26 PM | #2 | ||
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ERIN I hope you start feeling better soon. As for an allergic reaction, sounds possible to me, I was never allergic to anything until after I started treatment for MG and now I can hardly take anything You are in my thoughts.
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"Thanks for this!" says: | erinhermes (06-28-2009) |
06-25-2009, 07:28 PM | #3 | |||
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Awww Erin,
you don't need this right now, will be thinking of you, kate
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Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx |
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"Thanks for this!" says: | erinhermes (06-28-2009) |
06-25-2009, 08:05 PM | #4 | |||
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Quote:
Erin, Sorry that things are happening to you. You are in my prayers. I was on Immuran first and had bad side effects from it and had to go on CellCept. I took Immuran for 4 months but could not tolerate the side effects. CellCept has been better to me with less side effects. I hope the reaction, if that is what is happening, goes away quickly for you. Take care and stay in touch. On an up note, CellCept is now generic!!!! Big Hugs to you, Simon |
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"Thanks for this!" says: | erinhermes (06-28-2009) |
06-25-2009, 09:48 PM | #5 | ||
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Erin,
Dang girl! We're not allowing any more problems for you, ok? Hopefully the cellcept will help you to remission and you can be done with this stuff!!! Loves Ya Girl!
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Becky |
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"Thanks for this!" says: | erinhermes (06-28-2009) |
06-25-2009, 10:16 PM | #6 | ||
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Erin,
Really sorry to hear about your troubles. You deserve to catch a break - - and soon! 'Til then, hang in there - - and know that everyone here is rooting for ya!! Sue |
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"Thanks for this!" says: | erinhermes (06-28-2009) |
06-26-2009, 06:46 AM | #7 | ||
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Hi Erin,
hope you feel better soon. My dad had an allergic reaction the same as yours when he had the contrast dye for a CT scan. Its not nice. Take care Love Rach x |
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06-26-2009, 11:04 AM | #8 | |||
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Erin
Sorry it hear about your drug reaction ! I was not allegic to anything when I was younger, now anything other than mestnon, pred. & tylenol, see do do me in ! Very frustating & scary, antibiotics, I know for sure are a big no no !
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Mary . |
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"Thanks for this!" says: | erinhermes (06-28-2009) |
06-26-2009, 11:12 AM | #9 | ||
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Hi Erin,
Sorry to hear that you have hit a rough patch. Hopefully your doc sorts things out quickly! Take care ~ Mel |
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"Thanks for this!" says: | erinhermes (06-28-2009) |
06-26-2009, 02:54 PM | #10 | ||
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I still am trying to decide which to take Imuran or Cellcept. Erin how long had you been on Imuran?
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"Thanks for this!" says: | erinhermes (06-28-2009) |
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